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Posts by category
- Category: Raising Awareness
- Rare Diseases Are Not Rare!
- Hello, This Is Me
- Provider Outreach: New Committee Advocates for MdDS Patients
- Picture Perfect
- Be Ready to Raise MdDS Awareness on Rare Disease Day
- Perfect for JAM. Perfect for You.
- JAM. Spread it!
- Raise Your Voice: #RareDiseaseDay 2016 is Coming
- Looking Back at 2014, Ahead to 2015, and a Call for Volunteers!
- MdDS: an Infographic and letter to share
- Run to Raise Awareness in the UK
- It’s Rare Disease Day! Tell us the challenges you face having a #RareDisorder
- How Are You Celebrating Being Rare?
- Global Genes Project Features MdDS Patient Story
- Rock’n Stroll 2012
- More Cities Added to the MdDS Walk Series
- Where’s Your Pin?
- Registration Opened for 2012 Awareness Walk
- Wear That You Care
- Gillian Archer Raises Awareness on BBC Radio
- JAM: Life Vest Awareness Mailer
- Finally! We Rock T-Shirts
- MdDS in the News: South African papers tell the stories of 3 MdDSers
- MdDS in the News: Mother-of-three suffers airsickness for life after turbulent flight to Florida SIX YEARS ago
- Marching to Rare Disease Day
- Category: Guide for Caregivers
- Category: Acknowledgment
- How’d we do this Giving Tuesday?
- #MakeADifferenceDay, Honor Donations
- 🌟 Donor All-Stars
- Honor & In Memoriam Donations
- Honor & In Memoriam Donations
- 💌 Honor someone that suffers with #whatchamacallit.
- Heartfelt Thanks
- Special Announcement & Honor Donations
- Honor Donations
- Honor Donations
- Honor and Memory Donations
- Donations in Memoriam
- Honor Donations
- Honor Donations
- In Memory & Honor Donations
- In Memory & Honor Donations
- Honor Donations
- In Memory & Honor Donations
- Honor Donations
- In Memory & Honor Donations
- In Memory & Honor Donations
- Donations with Special Messages
- Category: Announcements
- Make the Matches 🙌 Announcing Two Matching Challenges!
- This GivingTuesday at the MdDS Foundation
- ⏱️ Countdown to Rare Disease Day: 35 Days
- Important Awareness News; Matching Challenge Deadline
- Make the Match and Give Cheer on Giving Tuesday
- $1,000 Matching Challenge: Deadline Extended to Jan 27
- Sept. 27: 4th Annual Awareness Walk
- Press Release: $150,000 Donation to Fund Vital Research
- Cinco de Mayo Fundraiser at Carpool, Herndon
- For a Cause. For a Cure. For a Change.
- PLOS ONE Research Article: Metabolic and Functional Connectivity Changes in Mal de Debarquement Syndrome
- Foundation Provides a Major Research Award
- Less Common Neuro-otologic Disorders
- Recruitment for New Clinical Research Study
- Matching Donation Challenge Met!
- Category: Faces of MdDS
- I Look Normal, by Tami G.
- We can do this. I believe in you! ~ Katie
- Be Still: a Poem by Farzleen
- “Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered.
- LeeAnne suffers with dizziness that isn’t vertigo.
- There is always hope. Never give up. ~ Jodi
- Meet invisible illness warrior and young mother of three, Emily.
- Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar?
- Meet Jim, long-time MdDS Warrior from Belfast.
- Meet Board President, Marilyn Josselyn
- Trampoline Days, a poem by Lois.
- Cursed by the Metro
- Inside it’s a nightmare, but I am a Warrior, every day.
- Fight to Find Your Purpose
- Case History: Anne in Portland gets her diagnosis after 10 long years
- Traveling with MdDS: Advice from Elaine
- Brandy’s Not-from-a-Cruise MdDS Story
- Celeste’s Journey: a decade with MdDS
- Sky, Sea & Me
- Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment
- Robert’s Story: Self-Diagnosed 36 yr-old Atlantan
- "My disorder may be invisible, however, I refuse to be."
- Annual trip to Lake Powell triggers episodic MdDS for M.
- Tom’s story: relief from the rocking while hitting the road again
- Mia’s Story and a Sweet Surprise
- Trans-Atlantic flight leaves woman with Disembarkment Syndrome
- Still on the Christmas Cruise
- Jessica’s Story
- Doug’s Strange Days
- 8 Years After Spontaneous Onset, Alice Experiences a "Miracle"
- Caribbean cruise triggers MdDS for Pamela
- Katie’s Case History: Diagnosed 2 Years After Trip to Oz
- Rosanna’s Story of Recovery and Reconnection
- Elaine’s Story of Remission, Compassion and Advocacy
- Jeri Hilderley’s Story of MdDS
- Sylvie Bartels’ Story of MdDS
- I met another 1-in-10 today!
- Category: Case Histories
- Category: Research
- The biological basis of MdDS is real. Studies have given us an understanding of basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD
- Mount Sinai School of Medicine, VOR Readaptation
- LIBR Study Recruitment: Transcranial Magnetic Stimulation
- LIBR Study Recruitment: Cranial Electrical Stimulation
- Clinical Capsule Report: Repetitive Transcranial Magnetic Stimulation for Mal de Debarquement Syndrome
- Study on Treatment of Mal de Debarquement Syndrome
- NIH Grant Awarded for Research Study
- Category: News
- Welcome, friends and supporters. The time is here!
- Finally Available! Awareness Bracelets for MdDS
- Our rare disorder with the strange French name
- Warm-Up to the Challenge!
- Mary Kay Fundraiser, Now Through December 19
- One Epic Run to Raise Awareness
- Sara’s Shopping Tips
- MdDS Walk 2013: Denver, UK and…
- There’s just one week left to JAM. Let’s end it with a BANG!
- Our Friendraiser Store
- MdDS: a Rare, Invisible Syndrome
- Category: Physician's Perspective
- Category: Uncategorized
- 1 Thing You Can Do RIGHT NOW to Help Beat MdDS
- The Foundation Educates Doctors
- STOP! and drop. that. Pumpkin. Spice. Latte.
- Thank you kind supporters. We’re Rocking Our Way to $40K.
- Things people need to know about people suffering from MAV/ MdDS/ chronic dizziness.
- Volunteer Spotlight: Breanna
- New Survey – Closed
- Holiday Greetings
- Forget about Black Friday. Stay in bed & shop in bed!
- “Let’s End JAM with a Big Bang” Matching Challenge
- Today is Social Media Day
- The Silver Lining in My Hot Water Tank
- Our Cause Earns Money Every Time You GoodSearch
- Category: Raising Awareness
Research
- Sham-Controlled Study of Optokinetic Stimuli as Treatment for Mal de Debarquement Syndrome
- Mal de Debarquement Syndrome: a survey on subtypes, misdiagnoses, onset and associated psychological features
- A new theory on GABA and Calcitonin Gene-Related Peptide involvement in Mal de Debarquement Syndrome predisposition factors and pathophysiology
- Mal de Debarquement Syndrome: A Retrospective Online Questionnaire on the Influences of Gonadal Hormones in Relation to Onset and Symptom Fluctuation
- Metabolic and Functional Connectivity Changes in Mal de Debarquement Syndrome
- Electrophysiological Signatures of Intrinsic Functional Connectivity Related to rTMS Treatment for Mal de Debarquement Syndrome
- Mal de Debarquement Syndrome: a survey on subtypes, misdiagnoses, onset and associated psychological features.
- Comprehensive Clinical Profile of Mal De Debarquement Syndrome
- Perspective: Stepping Stones to Unraveling the Pathophysiology of Mal de Debarquement Syndrome with Neuroimaging.
- Resting state functional connectivity signature of treatment effects of rTMS in Mal de Debarquement Syndrome
- Treatment of the Mal de Debarquement Syndrome: A 1-Year Follow-up.
- Assessing rTMS effects in MdDS: Cross-modal comparison between resting state EEG and fMRI connectivity.
- Double-Blind Sham-Controlled Crossover Trial of Repetitive Transcranial Magnetic Stimulation for Mal de Debarquement Syndrome.
- Randomized Single Blind Sham Controlled Trial of Adjunctive Home-Based tDCS after rTMS for Mal De Debarquement Syndrome: Safety, Efficacy, and Participant Satisfaction Assessment.
- Voxel based morphometry alterations in mal de debarquement syndrome
- Mal de Debarquement Syndrome: new insights.
- The relationship between symptom severity, stigma, illness intrusiveness and depression in Mal de Debarquement Syndrome
- Changes of symptom and EEG in mal de debarquement syndrome patients after repetitive transcranial magnetic stimulation over bilateral prefrontal cortex: a pilot study.
- Readaptation of the vestibulo-ocular reflex relieves the mal de debarquement syndrome
- Lasting Modulation Effects of rTMS on Neural Activity and Connectivity as Revealed by Resting State EEG.
- Rocking dizziness and headache: a two-way street.
- Repetitive transcranial magnetic stimulation for mal de debarquement syndrome.
- Effects of persistent Mal de debarquement syndrome on balance, psychological traits, and motor cortex excitability.
- Less common neuro-otologic disorders.
- Social, societal, and economic burden of mal de debarquement syndrome.
- Exploring the pathophysiology of Mal de Debarquement.
- Mal de Debarquement
- Clinical features and associated syndromes of mal de debarquement.
FAQs
- Are there similar conditions? What are some other balance disorders?
- With MdDS remission, do symptoms decrease gradually or disappear suddenly?
- How did I get MdDS? I never went on a cruise. Can I have MdDS without a motion event?
- Are there any MdDS clinical trials/research studies?
- Are MdDS symptoms worse during a woman’s period (menses)?
- Is there a treatment to prevent or reduce MdDS symptoms?
- Is there a cure for MdDS?
- How do I get an MdDS diagnosis? Should I see a GP or ENT?
- How long does MdDS last? I'm 2 weeks out from a cruise and am still on the boat.
- I have MdDS. Will symptoms become worse if I go on a cruise or undertake extended travel by air, train, or car?
- I have had MdDS that resolved on its own. Will I develop this again if I go on another cruise?
- What is MdDS?