The MdDS Foundation relies on volunteers to accomplish its mission. If you have skills or connections that can make a difference, please contact us. Tell us what your talents are or how you can help. Opportunities to help are not limited to the following positions:
Treasurer
Work closely with the board president and secretary to create the overall budget and budgets for specific programs, overhead, labor costs, and administrative expenses. Work with a bookkeeper to provide monthly and annual financial reporting. Qualifications include:
- Ability to provide organizational leadership to help the organization grow and develop strategies that expand its reach,
- Verbal and written communication skills to write descriptive financial reports and better collaborate with other board members,
- Financial expertise,
- An understanding of the nonprofit’s mission and vision,
- Fundraising and resource development skills,
- Proficiency with QuickBooks and Excel.
Healthcare Provider Outreach
Work with us to improve the experience the MdDS community has with healthcare providers. At present, our need is lead generation. We must find young doctors/researchers to replace those who have retired. We also maintain a large database of professional contacts to keep educated and made aware of new developments. If you can help get MdDS included on medical school curricula, please contact us.
Volunteer tasks/requirements are as follows:
• adhere to our Mission and Goals and represent the MdDS Foundation in all communications
• make phone calls
• mail educational packets (brochures, pre-written outreach letters, etc.)
• must be comfortable using a spreadsheet program such as Excel
Volunteer tasks/requirements are as follows:
• adhere to our Mission and Goals and represent the MdDS Foundation in all communications
• make phone calls
• mail educational packets (brochures, pre-written outreach letters, etc.)
• must be comfortable using a spreadsheet program such as Excel
Estimated time requirement: discretionary
Social Media Manager
This is a great opportunity for you as a Patient Ambassador. Add your voice to ours and help bring MdDS to the forefront. To maintain our top Google ranking, we need regular quality blog and social media posts, content that provides value to our various audiences (general public, patients, and healthcare professionals). Whether from a patient or caretaker perspective, you will contribute efforts to educate the general public, raise awareness, and garner support for our cause through social media sharing. Must be versed in the Instagram, Facebook, Twitter and YouTube platforms. The ability to expand our reach to traditional media is desired. Estimated time requirement: 5 hrs/month
Project Manager
Are you Type-A and like to be organized? We need a Project Manager to keep us on track to success. The Project Manager will monitor all volunteer activity and ensure projects move forward. Typical projects include educational brochure distribution, newsletter, awareness campaigns, and fundraising campaigns. Highlights of our editorial calendar include Rare Disease day in February, MdDS Awareness Month (June) and Giving Tuesday in November. With multiple projects going on simultaneously, efforts need to be timely and coordinated within both our support groups and all our social media channels (primarily Facebook and Instagram).
Estimated time requirement: 5 hrs/month, more during big campaigns
If you’re interested in any of these opportunities, just click on the red Volunteer button. Feeling more ambitious? Please contact us before starting any campaigns. Whether your idea is as small as an awareness bracelet or as big as an MdDS Walk, we’ll put you in touch with a board member or another volunteer who’s done it before. Our experience and expertise will make the process easier for you.
