An all-volunteer nonprofit foundation, we seek treatments and a cure for MdDS, a chronic neurological disorder causing the feeling of rocking and swaying, while assisting patients suffering from this life-altering disorder. We support research and studies that produce evidence-based findings.

Mission Statement

The mission of the MdDS Foundation is to promote education and research on the neurological disorder, Mal de Débarquement Syndrome.

Goals

  • To facilitate clinical studies designed to improve the diagnosis and treatment of MdDS,
  • To promote basic and clinical research to better understand the cause of this unique syndrome,
  • To collect, collate, and distribute demographic and other information from those with MdDS via online surveys (at present, our findings represent the world’s largest available database about this patient population),
  • To update professionals who provide medical care and treatment to MdDS patients,
  • To provide support and education for patients and families of those with this rare disorder.

Tax-deductible contributions are used to accomplish these goals only. The overhead cost to achieve our goals was less than 2% last year and is budgeted to remain at this level this year. The generosity of donors is absolutely vital as we steadfastly work toward these goals.

  

2018 Board of Directors

President: Marilyn Josselyn
Research Grants: Linda McManus, PhD
Researcher Liaison and PR: Deb Russo
Marketing: Tyler McNeil
Provider Outreach: Suzanne Marsh
Spokesperson: Cathy Helowicz
Treasurer: Terri Gibson
Website: Holly Balog

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