An all-volunteer nonprofit foundation, we seek treatments and a cure for MdDS, a chronic neurological disorder causing the feeling of rocking and swaying, while assisting patients suffering from this life-altering disorder. We support evidence-based research and studies that produce fact-based findings. EIN: 20-5953110

Mission Statement

The mission of the MdDS Foundation is to promote education and research on the neurological disorder, Mal de Débarquement Syndrome.

Goals

• To facilitate clinical studies designed to improve the diagnosis and treatment of MdDS,
• To promote basic and clinical research to better understand the cause of this unique syndrome,
• To collect, collate, and distribute demographic and other information from those with MdDS via online surveys (at present, our findings represent the world’s largest available database about this patient population),
• To update professionals who provide medical care and treatment to MdDS patients,
• To provide support and education for patients and families of those with this rare disorder.

Do you have skills or connections that can help achieve these goals? Write to us and tell us how you can help. We’re waiting to hear from you!

Board of Directors

President: Marilyn Josselyn
Chairman of the Board: Linda McManus, PhD
Treasurer: Jennifer Stoskus, PT, DPT, AVPT, NCS
Secretary: Susan Von Nida
Director of Communications: Holly Balog
Director: Ruth Goldblatt
Director of Fundraising: position open – Contact Us with Your Qualifications
Director of Provider Outreach: position open – Contact Us with Your Qualifications
Social Media Manager: position open – Contact Us with Your Qualifications

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