Make the Matches 🙌 Announcing Two Matching Challenges!

This is a time-sensitive announcement. The 2018 Giving Season launches on November 27 with two matching challenges. Challenge #1: $7 Million Match on Facebook Starting at 5am PST/8am EST donations to nonprofits on Facebook, like the MdDS Foundation, will be matched until $7 million in Facebook matching funds are dispersed. Just donate through our special Matching […]

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Rare Diseases Are Not Rare!

This is a test of the MdDS broadcasting system. 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! Here are a few submissions by MdDS warriors to the National Center for Advancing Translational Sciences (NCATS)​ “Rare Diseases Are Not Rare!” competition, which challenged individuals […]

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Hello, This Is Me

1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me, using the buttons below. Hello, could someone out there please fix me? I never asked for or deserved this […]

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Provider Outreach: New Committee Advocates for MdDS Patients

The MdDS Foundation is pleased to introduce you to our Provider Outreach Committee, co-chaired by Marilyn Williams and Suzanne Marsh. The committee works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible. Marilyn Williams is an MdDS warrior. She diligently researches and updates information on […]

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Picture Perfect

I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]

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I Look Normal, by Tami G.

I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […]

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