Join the team! Patient based MdDS research is recruiting.

Send participation inquiries to MdDSResearch@laureateinstitute.org or look up our current trial at https://clinicaltrials.gov/research recruiting. Effective research requires teamwork. Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be […]

Read More

Meet Board President, Marilyn Josselyn

My husband, Roger, and I had always enjoyed traveling. Paris. Hawaii. Thailand. Another time a trip to Morocco. We owned a timeshare in Cancun, a mere 4-hr flight from home. In 1998, we decided to embark on a different adventure, a special trip, a Russian waterways cruise. Promises of beautiful scenic settings, unforgettable experiences, new […]

Read More

There is always hope. Never give up. ~ Jodi

My name is Jodi Leffue, and I am a 52 year old woman from Franklin County, Virginia. In August 2017, I attended a family vacation on a cruise. I had a wonderful time on the cruise. I noticed I could feel the ship rock but was able to still enjoy myself. On the excursions, I […]

Read More

Meet Jim, long-time MdDS Warrior from Belfast.

Hi, I’m Jim Hunter, 45 from Belfast. I have been suffering from MdDS since I was a child. It has got gradually worse as I got older. When I step out of an elevator I feel I am bouncing up and down inside for days after. It is very erratic especially when trying to sleep. […]

Read More