A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS.
Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and make it […]
Did you know that June is our Awareness Month? Well, now you do and we’d like you to join us this JAM. MdDS Foundation informational brochures are a great way to spread the word and educate others about MdDS. To receive free brochures, send an email with your complete mailing address and quantity needed to […]
“If something’s confusing, just ask for help.” That’s the rule in my house. It’s an aide for surviving MdDS. The only problem is, if your brain is foggy then you probably don’t realize you’re confused. That’s how it came to be that I left the car running in a parking lot and walked a couple blocks away […]
The Foundation uses two simple yet effective tools to advocate for you, on your behalf. Upon your request Board President, Marilyn Josselyn, herself will mail out a letter to your doctor that introduces them to MdDS. This one page letter briefly describes MdDS, possible etiology and current research efforts. Click to view a sample: Letter for […]