Our Blog

Does MdDS have an ICD code?

This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post.

Read More

“Don’t Give Up” by Joan W

“I saw every ENT doctor in my area. None of them had ever heard of MdDS.” Refusing to give up, Joan found an otolaryngologist who diagnosed her immediately. Read her story of encouragement. It’s on the blog today.

Read More

“A wobbly tale” by Palm

In spite of the variability, unpredictability and invisibility to others, Palm’s story contributes to the crucially important work of educating each other and the wider public about MdDS.

Read More

Rocking Candles, Giving Back since 2018

For eight years, Rocking Candles has been explaining to others what daily life is like for MdDS sufferers. Kate, owner and MdDS warrior herself, has also been giving back through donations to support research so we can all “get off that boat.” Read to learn more about Kate and her custom candles.

Read More