Join the team! Patient based MdDS research is recruiting.

Send participation inquiries to MdDSResearch@laureateinstitute.org or look up our current trial at https://clinicaltrials.gov/research recruiting. Effective research requires teamwork. Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be […]

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We can do this. I believe in you! ~ Katie

My name is Katie Miller, and I have had MdDS since 2002. I took two short, uneventful flights on a Friday and two similar flights back on the following Sunday. I woke up that Monday with the unnerving sensation of walking on mattresses, and it looked like the walls were moving. I had absolutely no […]

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Be Still: a Poem by Farzleen

I am sharing my experience with fellow sufferers of this misunderstood condition because of how it took close to a year before a proper diagnosis was obtained after undergoing many tests, how frustrating and depressing it was prior to that not knowing what was actually happening to me, and for having people closest to me […]

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“Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered.

In September 2017, my husband, my two sons (ages 20 and 21) and myself went on our first cruise, two weeks before the canaries Portugal Spain. All was well on the cruise, none of us were sea sick, but we did have rough days around the bay of biscay. On return home, my two sons […]

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LeeAnne suffers with dizziness that isn’t vertigo.

My name is LeeAnne and I have had MdDS for 5 years. After my third cruise, an 8-day cruise with rough seas, I noticed a change in my eye sight and had trouble reading the menus. And when I debarked I never got my land legs back. I saw my family doctor and explained my […]

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There is always hope. Never give up. ~ Jodi

My name is Jodi Leffue, and I am a 52 year old woman from Franklin County, Virginia. In August 2017, I attended a family vacation on a cruise. I had a wonderful time on the cruise. I noticed I could feel the ship rock but was able to still enjoy myself. On the excursions, I […]

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Meet invisible illness warrior and young mother of three, Emily.

What caused my MdDS? Not a cruise. Not a windy drive. It was a medication given to me while I was under anesthesia having an operation. I was put under general anesthesia to remove a kidney stone that had been lodged in my right ureter for three and a half months. A pretty routine procedure, it […]

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