From simply donating to our cause to hosting a fundraiser, there are many activities that you can do, and we can help.
3 Easy Ways to Help
- Use social media to spread the word. We post shareable content on Twitter, Facebook, Instagram and YouTube. Repost, RT, share and comment.
- Shop through iGive.com – with an iGive profile automatic donations are made on your behalf. All you need to do is set the MdDS Balance Disorder Foundation as your charity of choice and shop at https://www.iGive.com/mddsfoundation.
- Shop the MdDS Awareness Store on Zazzle. Find t-shirts, hats, phone cases… many everyday items to help you to raise awareness every day.
Please Note: Use of the MdDS Foundation logo, any content from this website, blog, or any of its digital properties without permission is strictly prohibited.
Open Volunteer Opportunities
Mailing Out Brochures
Join a team of MdDS warriors who send out professionally printed brochures (designed for new patients) and MdDS Knowledge Cards (quick reference for medical professionals). Must be able to use an online spreadsheet, similar to Excel.
Healthcare Provider Outreach
Work with other volunteers to build our healthcare provider database and improve the outcome for the MdDS community. At present, our need is lead generation. We maintain a large database of professional contacts, including both medical researchers and healthcare providers.
Volunteer requirements are as follows:
• must be willing to make phone calls
• must be comfortable using a spreadsheet program such as Excel
• must be a self-starter, able to complete assignments independently and in a timely fashion.
Volunteer requirements are as follows:
• must be willing to make phone calls
• must be comfortable using a spreadsheet program such as Excel
• must be a self-starter, able to complete assignments independently and in a timely fashion.
Web Developer
Proficiency in WordPress is required. We need someone to maintain our website (plugin and core updates at minimum). Ability to add functionality is greatly desired. Proofreading and copy editing skills would be a plus.
We are seeking an individual with a scientific or medical background to help with surveys and Patient Registry questionnaires.
Help propel research forward by creating questionnaires to collect the data that differentiates MdDS from common dizzy disorders and that medical professionals and researchers need. The MdDS Foundation conducts surveys to collect accurate patient data. Experience with QuestionPro is helpful but not required. We also have a Patient Registry to collect consistent information. Collecting and storing data in one place benefits patients, researchers, and biopharmaceutical companies who are working to help find new and better treatments. The current PIN data on Mal de Débarquement Syndrome skims the surface.
Social Media Manager
This is a great opportunity for you as a Patient Ambassador. Add your voice to ours and help bring MdDS to the forefront. To stay strong in Google rankings, we need regular blog and social media posts. Whether from a patient or caretaker perspective, you will contribute efforts to educate the general public, raise awareness, and garner support for our cause through social media sharing. Must be versed in the Twitter, Instagram, Facebook and YouTube platforms. The ability to expand our reach to traditional media is desired.
Project Manager
Are you Type-A and like to be organized? We need a Project Manager to keep us on track to success. The Project Manager will monitor all volunteer activity and ensure projects move forward. Typical projects include educational brochure, newsletter, awareness campaigns, and fundraising campaigns. Highlights of our editorial calendar include Rare Disease day in February, MdDS Awareness Month (June) and Giving Tuesday in November. With several projects going on simultaneously, efforts need to be timely and coordinated within both our support groups and all our social media channels (Facebook, Twitter, Instagram, YouTube).
If you’re interested in these opportunities, just click on the red Volunteer button. Feeling more ambitious? Please contact us before starting any campaigns. Whether your idea is as small as an awareness bracelet or as big as an MdDS Walk, we’ll put you in touch with a board member or another volunteer who’s done it before. Our experience and expertise will make the process easier for you.
- Fundraising is an important revenue stream for nonprofit and charitable organizations. While these earnings are tax-free, there are Internal Revenue Service rules for collecting, reporting and disclosing these earnings. When you contact us before starting, we can ensure your project is set up in adherence with all IRS nonprofit regulations.
- Advocacy is an important component of our mission. If you have a special skill or connections that you think can make a difference, please contact us and let us know what your talents are or how you can help.
