From simply donating to our cause to hosting a fundraiser, there are many activities that you can do, and we can help.

4 Easy Ways to Help

  1. Use social media to spread the word. We post shareable content on TwitterFacebookInstagram and YouTube. Tweet, RT, share and comment.
  2. Setup an profile and iGive will make automatic donations on your behalf. All you need to do is set the MdDS Balance Disorder Foundation as your charity of choice and shop at affiliated online stores.
  3. Shop AmazonSmile for an automatic 0.5% donation on eligible purchases to the charity of your choice. When logged in to both iGive and Amazon, the automatic donations get stacked.
  4. Shop the MdDS Awareness Store on Zazzle. A volunteer has designed t-shirts, hats, postage stamps and many other everyday items enabling you to raise awareness every day.
Please Note: Use of the MdDS Foundation logo, any content from this website, blog, or any of its digital properties without permission is strictly prohibited.


Work with other volunteers to update our Find a Doctor database and improve our website’s value to users like you.
Inclusion in the Find A Doctor professional directory is strictly opt-in. The Foundation maintains a database of over 500 medical professional contacts. Entries are contacted to A) ensure the practice wishes to be included on our website and B) ensure information accuracy.
Volunteer requirements are as follows:
must be willing to make phone calls
• must be comfortable using a spreadsheet program such as Excel
• must be a self-starter, able to complete assignments independently and on a timely basis.


We are currently seeking a an individual with a scientific or medical background to help customize our Patient Registry questionnaires.
The MdDS Foundation is actively developing a Patient Registry with Invitae to collect consistent information and establish accurate patient data. Collecting and storing data in one place benefits patients, researchers, and biopharmaceutical companies who are working to help find new and better treatments. The current PIN data on Mal de Débarquement Syndrome skims the surface. Help us create questionnaires to collect the data that differentiates MdDS from common dizzy disorders and that medical professionals and researchers need.


We are currently seeking Patient Ambassadors.
As a Patient Ambassador, you can add your voice to ours and help bring MdDS to the forefront. Patient Ambassadors are MdDS Warriors who are champions both in terms of surviving and thriving, and in terms of supporting our cause. We are looking for regular blog or social media posts from a patient or caretaker perspective. The Patient Ambassador will contribute efforts to educate the general public, raise awareness, and garner support for our cause primarily through social media sharing. Directly contacting traditional media would be additionally helpful.


Are you super organized? We need a Project Manager to keep us on track to success.
The Project Manager will monitor all volunteer activity and ensure projects move forward. Typical projects include educational brochure, newsletter, awareness campaigns, and fundraising campaigns. Highlights of our editorial calendar include Rare Disease day in February, MdDS Awareness Month (June) and Giving Tuesday in November. With several projects going on simultaneously, efforts need to be timely and coordinated within both our support groups and all our social media channels (Facebook, Twitter, Instagram, YouTube).

If you’re interested in these opportunities, just click on the red Volunteer button. Feeling more ambitious? Please contact us before starting any campaigns. Whether your idea is as small as an awareness bracelet or as big as an MdDS Walk, we’ll put you in touch with a board member or another volunteer who’s done it before. Our experience and expertise will make the process easier for you.

  • Fundraising is an important revenue stream for nonprofit and charitable organizations. While these earnings are tax-free, there are Internal Revenue Service rules for collecting, reporting and disclosing these earnings. When you contact us before starting, we can ensure your project is set up in adherence with all IRS nonprofit regulations.
  • Advocacy is an important component of our mission. If you have a special skill or connections that you think can make a difference, please contact us and let us know what your talents are or how you can help.
volunteer MdDS foundation
November 15
Volunteer for the MdDS Foundation webmaster 1:04 pm