About Mal de Débarquement Syndrome

Mal de Débarquement Syndrome (MdDS) is a neurological disorder of perceived movement manifesting as a feeling of rocking, bobbing, or swaying which seems to be alleviated in passive motion such as riding in a car. This is an important diagnostic feature of the syndrome.

Also known as Disembarkment Syndrome, MdDS most often develops following a cruise or other type of water travel; exposure need not be sustained or lengthy. MdDS has also been reported following air, train, and automobile travel; and less commonly after repeated elevator use, walking on docks, from the use of virtual reality equipment, or practically any motion experience. MdDS occurs in both genders, and in all age groups but current statistics demonstrate the highest reported incidence in females between the ages of 30 – 60. While MdDS most commonly presents itself after travel, for some onset appears to be spontaneous, without a motion event.

MdDS may persist for months to years, and there is a likelihood of recurrence after an initial onset. Many people experience the more common entity labelled “sea legs” upon alighting from travel experiences. “Sea legs” are a transient, normal response to travel which generally resolves quickly.

In addition to the rocking, bobbing, and/or swaying, there are many secondary symptoms. The sensation of motion is often associated with anxiety, fatigue, difficulty maintaining balance, unsteadiness, and difficulty concentrating (impaired cognitive function).

Symptoms usually begin shortly after the cessation of the motion stimulus, but occasionally there can be a delay between the end of travel and the onset of symptoms. The symptoms tend to be more noticeable in enclosed spaces or when attempting to be motionless (sitting, lying down, or standing in a stationary position).

Mal de Débarquement Syndrome does have a billing code found here: 2017 ICD-10-CM Diagnosis Code R42.

Download a PDF of our brochure, or request printed copies by contacting us.

FAQs

Is there an easier name than Mal de Débarquement Syndrome?

MdDS is the abbreviation for Mal de Débarquement Syndrome (Fr.), which translates to sickness upon disembarking (leaving a boat or other vehicle). This disorder is also known as Disembarkment Syndrome or colloquially as landsickness. It is less commonly known as Persistent Mal de Debarquement (PMdD), Rocking Dizziness or Rocking Vertigo.

Who should I see to get diagnosed? GP or ENT?

MdDS is primarily diagnosed by otolaryngologists, ENTs and neurologists. A list of possible providers is available on this site. You may wish to bring our informative brochure to your appointment as many health care providers are unaware of MdDS.

Is there a cure?

Unfortunately, no.

Is there a treatment which reduces symptoms?

At present there are no treatments or therapies proven to be helpful to those suffering with MdDS. Some are benefited with medications and vestibular rehabilitation therapy. A regular exercise program seems to help many.

I’m 5 days out from a cruise and am still on the boat. When will this be over?

In most individuals, the sensation of rocking, bobbing, swaying, etc. following a cruise or other prolonged motion experience is transient. Symptoms lasting up to two weeks is considered within the normal range. A diagnosis of MdDS is usually only given to those whose symptoms last 30 days or more.

The symptoms of MdDS may gradually dissipate and disappear altogether. In general, this is more likely to happen for those who are younger. But, for a few and with age, these symptoms may persist for an extended interval.

I have MdDS. Will symptoms become worse if I go on a cruise or undertake extended travel by air, train, or car?

Not necessarily. However, some individuals have described a transient increase in symptoms after these type of motion experiences.

I have had MdDS that resolved on its own. Will I develop this again if I go on another cruise?

Some individuals who have had MdDS that resolved redeveloped symptoms after a subsequent cruise (or other prolonged motion experience, depending on their unique triggers). However, there are some who did not. Many describe a more prolonged period of MdDS symptoms with each episode. Therefore, the recommendation is to avoid further cruises to minimize the likelihood that MdDS will recur.

Are MdDS symptoms worse during a woman’s period (menses)?

As with many chronic illnesses, many women experience increased symptoms before or during their menstrual cycle. MdDS is more common in women than men (9:1), however, the role of hormones in the exacerbation/remission of MdDS symptoms is not understood.

Are there any MdDS clinical trials/research studies?

This is a rare disorder and research studies are similarly rare. To our knowledge, there are only two active research studies on MdDS. One is being conducted at the Laureate Institute for Brain Research (LIBR) by Dr. Yoon-Hee Cha. The other is underway at Ohio University by Dr. Brian C. Clark. Both of these studies are funded, in part, by this Foundation.

Faces of MdDS

Trampoline Days, a poem by Lois.

Lois’ case involves experiencing 24/7 music in her brain. Not tinnitus, she “hears” regular musical notes. This is her poem.

Read More

Cursed by the Metro

“I believe you.” These can be the most powerful words you can say to someone who is crying each day desperate for the world to take them seriously. It is true when they say that you only realize the value of something when it is lost. I do not think that many people appreciate the […]

Read More

Inside it’s a nightmare, but I am a Warrior, every day.

I am a 37 year old female, living in Florida. 2006 was the first time I experienced this feeling of what I called “dizziness.”

Read More