Send participation inquiries to MdDSResearch@laureateinstitute.org or look up our current trial at https://clinicaltrials.gov/research recruiting. Effective research requires teamwork. Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be […]
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Living with MdDS
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The Faces of MdDS
“Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered.
In September 2017, my husband, my two sons (ages 20 and 21) and myself went on our first cruise, two weeks before the canaries Portugal Spain. All was well on the cruise, none of us were sea sick, but we did have rough days around the bay of biscay. On return home, my two sons […]
- It is typically triggered by motion: cars, trains, airplanes, ships, boats, and even fast elevators.
- The average person sees 20+ doctors before getting a diagnosis.
- Many people are suffering from MdDS and don’t know that they have it. They are undiagnosed.
- The scale of the problem is not matched by research dollars.
The MdDS phenomenon is the natural result of the human brain adapting to environmental motion and is thus the quintessential neurological disorder.Yoon-Hee Cha, MD
The Latest from Our Blog
I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […]
If you are a sibling, parent, child, friend, or caregiver to someone dealing with chronic illness, chances are you may ask yourself occasionally — or nonstop — How can I help? As a full-time caregiver to my wife, and also as a person with MdDS, I’ve written this guide which I hope will help you […]