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Faces of MdDS

Finding My Footing: How I Regained Control After an MdDS Diagnosis

A deeply personal story of resilience and recovery, this a powerful reminder of the strength within our community. Dakota shares what helped him the most and offers hope. Read his story on the blog!

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The Facts of MdDS

  • It is typically triggered by motion: cars, trains, airplanes, ships, boats, and even fast elevators.
  • The average person sees 20+ doctors before getting a diagnosis.
  • Many people are suffering from MdDS and don’t know that they have it. They are undiagnosed.
  • The scale of the problem is not matched by research dollars.

The MdDS phenomenon is the natural result of the human brain adapting to environmental motion and is thus the quintessential neurological disorder.

Yoon-Hee Cha, MD

The Latest from Our Blog

  • Supporting the Next Generation of MdDS Research

    Next Generation Research Grant (NGRG)The MdDS Foundation has partnered with the American Brain Foundation (ABF) to offer the Next Generation Research Grant in Mal de Débarquement Syndrome (MdDS). This two-year, $150,000 award is designed to support and encourage early-career researchers: who are studying MdDS disease mechanisms or translational research specifically designed to develop treatments for or […]

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  • Finding Hope and Empathy: “My Poem For MdDS Sufferers” by Debbie Whitmer

    “If people only knew what this pain feels like…” Living with MdDS for eight years, Debbie Whitmer shares a moving poem on empathy, understanding, and hope within the MdDS community. Read her story and share your thoughts.

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