This is a test of the MdDS broadcasting system. 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! Here are a few submissions by MdDS warriors to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition, which challenged individuals […]
Mal de Débarquement Syndrome (MdDS).is a neurological disorder that leaves patients feeling as if they are rocking and swaying. Imagine always feeling in motion.
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The Faces of MdDS
Picture Perfect
I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]
The Facts of MdDS
It is typically triggered by motion: cars, trains, airplanes, ships, boats, and even fast elevators.
The average person sees 20+ doctors before getting a diagnosis.
Many people are suffering from MdDS and don’t know that they have it. They are undiagnosed.
The scale of the problem is not matched by research dollars.
The MdDS phenomenon is the natural result of the human brain adapting to environmental motion and is thus the quintessential neurological disorder.
Yoon-Hee Cha, MD
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Rare Diseases Are Not Rare!
Hello, This Is Me
1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me, using the buttons below. Hello, could someone out there please fix me? I never asked for or deserved this […]