Home / Blog / Faces of MdDS / I met another 1-in-10 today! Our Blog Faces of MdDS 3.7.12 I met another 1-in-10 today! February 29, 2012 – Sitting in a business meeting, I casually mentioned that it was Rare Disease Day and a woman raised her hand proudly and said, “I have a rare disease!” I shouldn’t have been surprised, but I was. Having an orphan disease like MdDS, we so often feel isolated, and it seems like there’s no one out there that understands. But MdDS is just one of more than 7,000 rare diseases that, collectively, affect 1-in-10 Americans. Whether sitting together over a cup of coffee or chatting on FaceBook, taking action on Rare Disease Day removes that isolation and unites us in solidarity. Don’t fret if you weren’t able to get a Governor’s Proclamation. It took me two years to get one. Just remember, “Alone We Are Rare, Together We Are Strong.” Here are this year’s Visions of Solidarity. Irene H’s Governor’s Proclamation, NJ and Handprints Across America Cathy H’s Governor’s Proclamation, FL Pamela K’s Handprints Across America Julie L’s Handprints Across America Terri G’s Governor’s Proclamation, TX Lorie B’s Governor’s Proclamation, GA Holly B’s Governor’s Proclamation, CO Please visit rarediseases.org/ to learn more about our advocate, the National Organization for Rare Disorders. To learn more about Rare Disease Day and current National Organization for Rare Diseases initiatives, please visit the NORD web site. Related posts: “Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered. June 2024 Newsletter
The strength of numbers not only draws attention to the issues of rare diseases, but, also brings together those affected by a given rare disease. The resulting ‘group’ support provided by those who understand is immeasurable.
