My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.
Category: Faces of MdDS
June 1, 2022 – In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are funding a Clinical Research Training Scholarship focused on MdDS. The award aims to recognize the importance of good clinical research and to encourage early career investigators in clinical studies in Mal […]
In this episode of Ça commence aujourd’hui, French journalist Faustine Bollaert interviews a young woman who’s been dealing with Disembarkment Syndrome since June. Watch the clip in French or read the transcript in English here.
I’m Kate and I Rock… Literally. In 2018, I developed a neurological disorder Mal de Débarquement. It left me with the constant feeling of rocking and swaying, like I’m on a boat. Basically I never got my land legs back and I live in constant motion. I started making candles and launched Rocking Candles this year to help in some way. The sale of each of my candles, over 700 so far, raises awareness of MdDS and 10% of the proceeds from rockingcandles.com will go the MdDS Foundation!