Depicting her experience with MdDS through art, Christina shared Infinite Waves with us. The strong symbolism in this painting allows those living with MdDS to find commonality and validation for their own feelings.
My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.
I have made this painting as a way to visualise, capture, and why not, pay tribute to this invisible condition that is affecting my life but also making me appreciate it more. I dedicate this to all of you, #MdDSwarriors. ~Alex Bodea
MdDS on CSI:Vegas! 📺 S01E03, Gil Grissom says he has Mal de Débarquement! Then in episode 4 he tells wife, Sara, he’s still “Out to sea.” Where will @CSICBS take us next Wednesday?
In this episode of Ça commence aujourd’hui, French journalist Faustine Bollaert interviews a young woman who’s been dealing with Disembarkment Syndrome since June. Watch the clip in French or read the transcript in English here.
I’m Kate and I Rock… Literally. In 2018, I developed a neurological disorder Mal de Débarquement. It left me with the constant feeling of rocking and swaying, like I’m on a boat. Basically I never got my land legs back and I live in constant motion. I started making candles and launched Rocking Candles this year to help in some way. The sale of each of my candles, over 700 so far, raises awareness of MdDS and 10% of the proceeds from rockingcandles.com will go the MdDS Foundation!
I had just spent the 2016 Memorial Day weekend on my parent’s boat and dock. After leaving the lake, we stopped at a favorite eatery. I finally sat down for the first time and felt “it.” I looked at my wife and asked, “Does the floor feel like it’s moving?”
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior