My resilience saved me. Yours can save you. 💙

My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.

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Clinical Research Training Scholarship

     June 1, 2022 – In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are funding a Clinical Research Training Scholarship focused on MdDS. The award aims to recognize the importance of good clinical research and to encourage early career investigators in clinical studies in Mal […]

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Gravitational Pull

I have made this painting as a way to visualise, capture, and why not, pay tribute to this invisible condition that is affecting my life but also making me appreciate it more. I dedicate this to all of you, #MdDSwarriors. ~Alex Bodea

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“Out to Sea”

MdDS on CSI:Vegas! 📺 S01E03, Gil Grissom says he has Mal de Débarquement! Then in episode 4 he tells wife, Sara, he’s still “Out to sea.” Where will @CSICBS take us next Wednesday?

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Life Rocks with Rocking Candles

I’m Kate and I Rock… Literally. In 2018, I developed a neurological disorder Mal de Débarquement. It left me with the constant feeling of rocking and swaying, like I’m on a boat. Basically I never got my land legs back and I live in constant motion. I started making candles and launched Rocking Candles this year to help in some way. The sale of each of my candles, over 700 so far, raises awareness of MdDS and 10% of the proceeds from rockingcandles.com will go the MdDS Foundation!

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Russ’ Busy Day at the Lake

I had just spent the 2016 Memorial Day weekend on my parent’s boat and dock. After leaving the lake, we stopped at a favorite eatery. I finally sat down for the first time and felt “it.” I looked at my wife and asked, “Does the floor feel like it’s moving?”

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