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Hi, my name is Lynn. Sharing my story hoping to help others, and let them know…

You are not alone.

There is HOPE! After visiting several specialists, trying various medications, and undergoing physical therapy for 3 months, without improvement or clear answer, I stumbled upon the MdDS website in 2015 while researching persistent motion sickness. The website gave me hope, relief, and answers.

Finding doctors who are willing to learn about this rare syndrome is tough.

Most make you feel like they don’t believe you or they think you’re crazy. I have to take a preventative prescription to travel for life. My triggers include flying, boating, elevators, docks, and deplaning. The symptoms make you feel and look drunk, even though you’re not. The gloomy depression was the worst. Only lying down or driving relieves symptoms for me.

My symptoms subsided after 3 months.

Unfortunately, I have triggers that bring the symptoms back, mildly compared to the original onset. Feeling blessed I don’t have symptoms daily!

I encourage you to advocate for yourself. Find a doctor that is well educated on MdDS, and can offer treatment options. Never give up! ~Lynn F.

USE THESE RESOURCES TO EDUCATE DOCTORS

The MdDS Foundation Mission includes educating healthcare professionals and enabling you to do so, too. Please take advantage of these professionally designed self-advocacy tools:

Brochure: designed for newly diagnosed patients
MdDS Knowledge Card: quick reference card, designed for busy medical professionals
MdDS Symptom Severity Scale: 

Be sure to let them know how the changing severity level affects your daily living.