Meet invisible illness warrior and young mother of three, Emily. a Contributing Writer 4:00 am Faces of MdDS 2.10.2018 Meet invisible illness warrior and young mother of three, Emily. What caused my MdDS? Not a cruise. Not a windy drive. It was a medication given to me while I was under anesthesia having an operation. I was put under general anesthesia to remove a kidney stone that had been lodged in my right ureter for three and a half months. A pretty routine procedure, it […] Read More
Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar? a Contributing Writer 4:00 am Faces of MdDS 2.6.2018 Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar? After a four-day kayak trip in north Vancouver Island, August 2016, which also included flights and bus, I came back home and started working. I knew something was not quite right as I developed dizziness which then turned to nausea and vomiting which required hospitalization for five days. CT and MRI read as normal. Was […] Read More
Meet Jim, long-time MdDS Warrior from Belfast. a Contributing Writer 4:00 am Faces of MdDS 2.1.2018 Meet Jim, long-time MdDS Warrior from Belfast. I have been suffering from MdDS since I was a child. It has got gradually worse as I got older. When I step out of an elevator I feel I am bouncing up and down inside for days after. It is very erratic especially when… Read More
Meet Board President, Marilyn Josselyn MdDS Foundation 12:00 am Faces of MdDS 10.19.2017 Meet Board President, Marilyn Josselyn As a result of the challenges in learning about and adjusting to life with MdDS, Roger and I began a crusade to increase awareness about the disorder. Read More
MdDS: A year of island hopping Sheryl Soffer 10:15 am Case Histories 9.17.2017 MdDS: A year of island hopping For the past year, I’ve spent every day on a boat. When I stand, sit, walk, or lie down, I’m on a boat. When I read, eat, talk, or watch television, I’m on a boat. As I write this, I’m on a boat. But I actually haven’t been anywhere near a boat in more than […] Read More
Trampoline Days, a poem by Lois. MdDS Foundation 11:19 am Faces of MdDS 3.3.2017 Trampoline Days, a poem by Lois. Lois’ case involves experiencing 24/7 music in her brain. Not tinnitus, she “hears” regular musical notes. This is her poem. Read More
Still on a boat that’s never still Sheryl Soffer 4:36 pm Case Histories 1.12.2017 Still on a boat that’s never still You’ve probably stopped talking about it all the time, but MdDS is still a part of your life, and it drives decisions you make every day. Share to let your friends and family know that you’re coping, but also struggling sometimes. Read More
A Journey to MdDS Land Sheryl Soffer 1:46 pm Case Histories 10.15.2016 A Journey to MdDS Land In this story, I’m taking my friend Amy on an imaginary journey that’s very real to those of us who live with MdDS every day. We’ll be visiting a big carnival circus tent and you’ll experience several different rides and attractions – no clowns, I promise. Read More
