There is always hope. Never give up. ~ Jodi a Contributing Writer 4:00 am Faces of MdDS 2.15.2018 There is always hope. Never give up. ~ Jodi My name is Jodi Leffue, and I am from Franklin County, Virginia. In August 2017, I attended a family vacation on a cruise. I had a wonderful time on the cruise. I noticed I could feel the ship rock but was able to still enjoy myself. On the excursions, I still had the sensation of […] Read More
Meet invisible illness warrior and young mother of three, Emily. a Contributing Writer 4:00 am Faces of MdDS 2.10.2018 Meet invisible illness warrior and young mother of three, Emily. What caused my MdDS? Not a cruise. Not a windy drive. It was a medication given to me while I was under anesthesia having an operation. I was put under general anesthesia to remove a kidney stone that had been lodged in my right ureter for three and a half months. A pretty routine procedure, it […] Read More
Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar? a Contributing Writer 4:00 am Faces of MdDS 2.6.2018 Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar? After a four-day kayak trip in north Vancouver Island, August 2016, which also included flights and bus, I came back home and started working. I knew something was not quite right as I developed dizziness which then turned to nausea and vomiting which required hospitalization for five days. CT and MRI read as normal. Was […] Read More
Meet Jim, long-time MdDS Warrior from Belfast. a Contributing Writer 4:00 am Faces of MdDS 2.1.2018 Meet Jim, long-time MdDS Warrior from Belfast. I have been suffering from MdDS since I was a child. It has got gradually worse as I got older. When I step out of an elevator I feel I am bouncing up and down inside for days after. It is very erratic especially when… Read More
Meet Board President, Marilyn Josselyn MdDS Foundation 12:00 am Faces of MdDS 10.19.2017 Meet Board President, Marilyn Josselyn As a result of the challenges in learning about and adjusting to life with MdDS, Roger and I began a crusade to increase awareness about the disorder. Read More
MdDS: A year of island hopping Sheryl Soffer 10:15 am Case Histories 9.17.2017 MdDS: A year of island hopping For the past year, I’ve spent every day on a boat. When I stand, sit, walk, or lie down, I’m on a boat. When I read, eat, talk, or watch television, I’m on a boat. As I write this, I’m on a boat. But I actually haven’t been anywhere near a boat in more than […] Read More
Trampoline Days, a poem by Lois. MdDS Foundation 11:19 am Faces of MdDS 3.3.2017 Trampoline Days, a poem by Lois. Lois’ case involves experiencing 24/7 music in her brain. Not tinnitus, she “hears” regular musical notes. This is her poem. Read More
Still on a boat that’s never still Sheryl Soffer 4:36 pm Case Histories 1.12.2017 Still on a boat that’s never still You’ve probably stopped talking about it all the time, but MdDS is still a part of your life, and it drives decisions you make every day. Share to let your friends and family know that you’re coping, but also struggling sometimes. Read More
