A Guide for Our Caregivers
Mike Nelson, full-time caregiver to his wife and also a person with MdDS, shared this helpful guide to help you navigate life with MdDS.
Category: Guide for Caregivers
MdDS: a Rare, Invisible Syndrome
Having a rare, invisible syndrome can be lonely but Elaine offers some words of wisdom for friends and family. How to Be a Friend to a Friend Who’s Sick is written by Letty Cottin Pogrebin. Pogrebin is an acclaimed journalist, public speaker, political activist, and author of several nonfiction bestsellers. During her extended period of treatment for […]