A Guide for Our Caregivers

If you are a sibling, parent, child, friend, or caregiver to someone dealing with chronic illness, chances are you may ask yourself occasionally — or nonstop — How can I help? As a full-time caregiver to my wife, and also as a person with MdDS, I’ve written this guide which I hope will help you […]

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MdDS: a Rare, Invisible Syndrome

Having a rare, invisible syndrome can be lonely but Elaine offers some words of wisdom for friends and family. How to Be a Friend to a Friend Who’s Sick is written by Letty Cottin Pogrebin. Pogrebin is an acclaimed journalist, public speaker, political activist, and author of several nonfiction bestsellers. During her extended period of treatment for […]

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