Construction of the MdDS Patient Registry, a global research study, is progressing at a steady pace. Like all qualified research, it has a Principal Investigator (PI) The PI is the person or people responsible for the research project. and an Institutional Review Board IRBs ensure that research is ethically acceptable, comply with regulations, and protects […]
Effective research requires teamwork.Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been investigated […]
Land Sickness After Cruise or BoatingYou’re standing in a small boat tied to a dock, waves moving you back and forth, up and down, and side to side. Now, imagine that you feel this way all the time, even without the boat. You can’t concentrate. Your head hurts. You’ve never felt so fatigued in your […]