Supporting the Next Generation of MdDS Research MdDS Foundation 5:50 pm Announcements, Research 08/12/2026 Supporting the Next Generation of MdDS Research DEADLINE EXTENDED! This two-year, $150,000 award is designed to support and encourage early-career researchers. Expanding the field of researchers focused on MdDS is essential to improving understanding, developing targeted treatments, and driving progress. Read More
Bridging Gaps: Connecting Data and Clinical Outcomes MdDS Foundation 12:00 am PROspective, Research 08/11/2026 Bridging Gaps: Connecting Data and Clinical Outcomes Turning insights into answers: Read how evidence-based research is accelerating targeted treatment solutions. Read More
The MdDS Patient Registry is Research MdDS Foundation 10:27 am Patient Registry, I Am Empowered 03/17/2026 The MdDS Patient Registry is Research Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights. Read More
Could Regular Tracking Be Your Key to Remission? MdDS Foundation 1:05 pm Patient Registry, I Am Empowered 09/24/2025 Could Regular Tracking Be Your Key to Remission? Routine tracking may reveal patterns that you never noticed before, enabling you to adjust your management tactics and take control of your MdDS. And maybe even achieve remission. Read More
Clinical Research Training Scholarship MdDS Foundation 12:00 am Announcements, Faces of MdDS, Research 06/01/2025 Clinical Research Training Scholarship In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are offering a Clinical Research Training Scholarship focused on MdDS. Read More
NEW Severity Scale Simplifies MdDS Symptom Tracking MdDS Foundation 1:26 pm Advocacy, Patient Registry, I Am Empowered, Announcements 04/03/2025 NEW Severity Scale Simplifies MdDS Symptom Tracking Remarkably simple to use and available as a book mark. ?️ Or download and print to start using today. Bridge the communication gap between doctors and patients! Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Raising Awareness, Advocacy, Research 11/22/2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11/16/2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
