Research Archives | MdDS Foundation

Patient Registry, I Am Empowered 03/17/2026

MdDS Patient Registry: Research Designed with You in Mind

Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights.

I Am Empowered, Patient Registry 09/24/2025

Could Regular Tracking Be Your Key to Remission?

Routine tracking may reveal patterns that you never noticed before, enabling you to adjust your management tactics and take control of your MdDS. And maybe even achieve remission.

Announcements, Faces of MdDS, Research 06/01/2025

Clinical Research Training Scholarship

In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are offering a Clinical Research Training Scholarship focused on MdDS.

Advocacy, Patient Registry, I Am Empowered, Announcements 04/03/2025

NEW Severity Scale Simplifies MdDS Symptom Tracking

Remarkably simple to use and available as a book mark. 🖨️ Or download and print to start using today. Bridge the communication gap between doctors and patients!

Raising Awareness, Advocacy, Research 11/22/2024

Part 2: The 2024 Breakthrough Summit, Tote & PAOs

Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.

Raising Awareness, Advocacy, Faces of MdDS, Research 11/16/2024

Alone we are Rare. Together we are Strong.

The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.