Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Category: Research
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Scholarship Announcement & Commitment to Cures
Our commitment to life-changing research continues with a scholarship announcement.
Clinical Research Training Scholarship
June 1, 2022 – In collaboration with the American Academy of Neurology (AAN), the MdDS Foundation and American Brain Foundation (ABF) are funding a Clinical Research Training Scholarship focused on MdDS. The award aims to recognize the importance of good clinical research and to encourage early career investigators in clinical studies in Mal […]
The biological basis of MdDS is real. Studies have given us an understanding of the neural basis of MdDS, and guided the development of different forms of non-invasive brain stimulation therapies. – Yoon-Hee Cha, MD
Effective research requires teamwork. Research into the biological basis of MdDS has advanced rapidly in the last 10 years through the collaborative efforts of scientists, engineers, clinicians, funding organizations, and not least of all, people affected by MdDS. It would be difficult to find any other disorder in the same time period that has been […]
Mount Sinai School of Medicine, VOR Readaptation
The following update is provided by Mingjia Dai, PhD., Mount Sinai School of Medicine. Oct. 30, 2014 — Since the publication on the study of the treatment for patients with MdDS, we have further explored VOR Readaptation for patients with classic MdDS (17 patients), spontaneous MdDS (no clear cause, 9 patients) and “MdDS” from head trauma (2 patients). […]
Press Release: $150,000 Donation to Fund Vital Research
Donation to Fund Vital Research into Mal de Debarquement Syndrome Shannondell, PA – November 20, 2013 – The MdDS Balance Disorder Foundation is pleased to announce that it has received a $150,000 donation from Ellen Kaye to fund vital research into the cause of and a cure for Mal de Débarquement Syndrome. This donation, along with funds […]