Gillian Archer Raises Awareness on BBC Radio MdDS Foundation 12:03 pm Raising Awareness 7.6.2012 Gillian Archer Raises Awareness on BBC Radio Wolverhampton, West Midlands, UK: Gill Archer talks to BBC Radio’s Adrian Goldberg, telling her story of being travel sick for years and how she fought for a diagnosis. “If you’re not getting the answers, then keep pushing, keep looking. Look for answers. You have to push for an answer. Don’t just accept, ‘There’s nothing I can […] Read More
JAM: Life Vest Awareness Mailer MdDS Foundation 4:41 pm Raising Awareness, art 6.4.2012 JAM: Life Vest Awareness Mailer This brochure concept was designed by a young lady named Keely. It’s an orange life vest and when folded for mailing, the sticker to close it would be the buckle of the vest. Pretty clever, don’t you think?It is such a great piece because not only does it show that someone gets it but also […] Read More
Finally! We Rock T-Shirts MdDS Foundation 9:50 am Raising Awareness 5.18.2012 Finally! We Rock T-Shirts For a number of years, people have been asking for MdDS t-shirts or mugs. Now you can finally get these items at our new Friendraiser Store! With June Awareness Month (JAM) right around the corner, now is a great time to order. There are two mug designs and two t-shirt designs, including a reprint of […] Read More
MdDS in the News: South African papers tell the stories of 3 MdDSers MdDS Foundation 1:20 pm Raising Awareness 4.16.2012 MdDS in the News: South African papers tell the stories of 3 MdDSers ENT specialist Dr. Duane Mol explains MdDS to heritage newspaper, The Star.Through the stories of three MdDSers this well-written article, published in South African newspapers The Star and The Pretoria News, tells how life-altering MdDS truly is. The Strange and Rare Disorder that Ended My Career and Quality of Life: Marlene van Rensburg of Waverly, Pretoria […] Read More
MdDS in the News: Mother-of-three suffers airsickness for life after turbulent flight to Florida SIX YEARS ago MdDS Foundation 1:22 pm Raising Awareness 2.24.2012 MdDS in the News: Mother-of-three suffers airsickness for life after turbulent flight to Florida SIX YEARS ago “A nurse has been left feeling permanently airsick – ever since she stepped off a turbulent flight six years ago.Gill Archer, from Wolverhampton, West Midlands, was left struggling to balance, feeling queasy and permanently dizzy when she stepped off the long-haul flight to Florida in 2006.The mother-of-three assumed the feeling would pass – but was […] Read More
Marching to Rare Disease Day MdDS Foundation 5:59 pm Raising Awareness 1.12.2012 Marching to Rare Disease Day Yesterday, I sent a request to Governor John Hickenlooper, to declare February 29, 2012 as Rare Disease Day in Colorado. Getting your governor’s proclamation is important because it raises awareness about orphan disorders like ours. It was actually pretty easy, but it would’ve been even easier if I’d known a couple of things beforehand. Today, […] Read More
