Rare Diseases Are Not Rare!

This is a test of the MdDS broadcasting system. 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! Here are a few submissions by MdDS warriors to the National Center for Advancing Translational Sciences (NCATS)​ “Rare Diseases Are Not Rare!” competition, which challenged individuals […]

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Hello, This Is Me

1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me, using the buttons below. Hello, could someone out there please fix me? I never asked for or deserved this […]

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Provider Outreach: New Committee Advocates for MdDS Patients

The MdDS Foundation is pleased to introduce you to our Provider Outreach Committee, co-chaired by Marilyn Williams and Suzanne Marsh. The committee works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible. Marilyn Williams is an MdDS warrior. She diligently researches and updates information on […]

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Picture Perfect

I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]

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Be Ready to Raise MdDS Awareness on Rare Disease Day

To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all! The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their […]

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Perfect for JAM. Perfect for You.

Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time. The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and […]

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