Shine a Light on MdDS

Join us and “Shine a Light on MdDS.” Whether using social media, sending out educational brochures, or wearing MdDS apparel while you’re out-and-about, your help is vital to raising awareness of MdDS.

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Hello, This Is Me

1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me.

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Picture Perfect

After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor.

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