Sylvie Bartels’ Story of MdDS MdDS Foundation 3:21 pm Faces of MdDS 03/15/2012 Sylvie Bartels’ Story of MdDS After many years of suffering from MdDS, which was acquired after a horseback ride and associated with severe TMJ pain, Sylvie feels she is finally able to enjoy life again — all because of the vestibular therapy that she still incorporates into her life on a daily basis.LONG POST WARNING: If you have MdDS and […] Read More
Marilyn Josselyn’s MdDS Story MdDS Foundation 12:00 am Raising Awareness, Our Impact, Advocacy 03/12/2012 Marilyn Josselyn’s MdDS Story Marilyn and Roger Josselyn founded the MdDS Foundation after Marilyn developed Mal de Débarquement Syndrome (MdDS) in 1998. Their efforts have increased awareness of the disorder, growing membership to over 600 worldwide. The foundation aims to promote research, provide support, and educate medical professionals about MdDS diagnosis and treatment. Read More
I met another 1-in-10 today! MdDS Foundation 2:50 pm Faces of MdDS 03/07/2012 I met another 1-in-10 today! February 29, 2012 – Sitting in a business meeting, I casually mentioned that it was Rare Disease Day and a woman raised her hand proudly and said, “I have a rare disease!” I shouldn’t have been surprised, but I was.Having an orphan disease like MdDS, we so often feel isolated, and it seems like there’s […] Read More
