Sylvie Bartels’ Story of MdDS

After many years of suffering from MdDS, which was acquired after a horseback ride and associated with severe TMJ pain, Sylvie feels she is finally able to enjoy life again — all because of the vestibular therapy that she still incorporates into her life on a daily basis.LONG POST WARNING: If you have MdDS and […]

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I met another 1-in-10 today!

February 29, 2012 – Sitting in a business meeting, I casually mentioned that it was Rare Disease Day and a woman raised her hand proudly and said, “I have a rare disease!” I shouldn’t have been surprised, but I was.Having an orphan disease like MdDS, we so often feel isolated, and it seems like there’s […]

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