Cause bracelets have been available for breast cancer and heart disease but there has never been a unifying symbol, color or bracelet that represents the rare and genetic disease community. That’s why the Global Genes Project started the 7,000 Bracelets for Hope™ campaign.
They collect unique bracelets made by jewelry designers, artists, crafters, church groups, girl scout troops and other volunteers and then distribute them to families fighting rare and genetic diseases. Adults receive handcrafted bracelets made by jewelry designers while children receive friendship bracelets filled with hope. We encourage you to Wear that You Care and participate in the 7,000 Bracelets for Hope™ campaign. Contribute or request a bracelet today. They also give us hope through social-sharing of our stories of hope.
For her interview with the Global Genes Project, Deb Russo is wearing a special hat that features a blue fabric flower made by Gibson Girls Productions, supporter of several fundraising and awareness events for the MdDS Foundation. They’ve donated event planning time and silent auction items for Catch the Chocolate Wave in 2010, a wine tasting event and an Open House fundraiser, both in 2011. This year they’re providing raffle prizes for our annual awareness walk in Colorado. If you’re attending the Colorado Rock’n Stroll, you could win a hat like the one Deb’s wearing. When you register for the walk, you’ll automatically be entered to win and Wear That You Care.* The Gibson Girls is owned by Tracine Gibson, whose daughter, Keely, is the talented young lady that created the Life Jacket awareness piece.
These are such great awareness efforts! Read – and share – Deb’s story on the Global Genes Project blog, by clicking on her photo.
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About the Global Genes Project:
Led by Team R.A.R.E., the Global Genes Project‘s primary mission is to increase rare disease and genetic awareness worldwide and empower a vibrant rare disease community. The non-profit organization works to increase public and physician education, builds community through social media and is working to fund innovative ways to increase rare disease research. 7,000 different rare diseases exist – 95% have no treatments.
*sorry we can’t mail it to you, you must be present at the Colorado walk to claim.
Blog looks great!
Thanks for the props!
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