In Memory & Honor Donations

The Foundation acknowledges the following donations made by friends and loved ones. Thank you for your care and support.

Donation in Memoriam
In memory of Jeanette A. “Jean” Beam – Julie Lipp

Donations in Honor
In honor of Gene Epstein’s 75th birthday – Marilyn and Roger Josselyn
In honor of Aunt Lily’s 90th Birthday – Marilyn and Roger Josselyn

The following friends made a donation in honor of Joy Sheerer:
Jennifer Accola • Danit Bismanovsky • Francisco Rábano Crespo
Carla Duharte • Jennifer Dunn • Oscar Fors • Anna Fox • Scott Futryk
Terri Gibson • Todd Gilbert • Joshua Goines • Sabrina Hornbeck
Jason Jesensky • Amy Kopp • Diana Krieg • Ken Kunishige
Carrie Lorton • Theodore Luty • Jennel Massey • Carol Molina
Christine Moore • John Mracek • Penman-Elefant Trust
Dean T. and Marian M. Penman • Marcia Peterson • Allegra Petra
Laura Poole • Anu Sarma • Tinaz & Chris Sheerer • Heather Volkman
Brandi Weinstein • Elizabeth Weiss • Michelle Yates

A matching donation in Joy’s honor was also made in the amount of $1,000. The Foundation sincerely thanks Joy and her anonymous matching donor for their generosity. To learn about Joy and her work to raise MdDS awareness be sure to watch her segment on The Doctors TV show which aired on April 25.

We’d also like to take another opportunity to thank Mia and CC’s Cupcake Heaven for raising $1,300 for the MdDS Foundation through a special Rare Disease Day event. You can see photos and details on her Facebook page. These funds will help support much needed research and education efforts.

As June Awareness Month (JAM) approaches, please consider what you can do to help the Foundation advocate for you.


To make a donation “in honor of” or “in memory of” designated individuals or occasions, please complete the Memorial or Honor Donation Form (downloadable PDF) and mail to:
MdDS Foundation
Marilyn Josselyn, President
22406 Shannondell Drive
Audubon, PA 19403


Alternately, you may use Pay Pal or Click and Pledge, and use the comment field to leave your donation dedication. Your dedication will be recognized in our next newsletter and acknowledgement post.