Home / Blog / Faces of MdDS / I Look Normal, by Tami G. Our Blog Faces of MdDS 9.10.18 I Look Normal, by Tami G. I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always done. I look normal. I hold my daughter’s hand as we walk down the street. I wave to my neighbours brightly saying hello. I look normal. I push the cart around the grocery store. I pick out my family’s favourite goodies and pay at the cash, just like anyone else. I look normal. But look a little closer and You will see that As I chitter chat I keep my head straight And stop it from inclining towards you which would send my mind in a Spinning spitter spatter. As I giggle and gossip I grip the arms of my chair tightly Because I’m afraid I might tip off. You will see that As I walk down the street I hold my daughter away from me so her tiny toddler legs don’t trip me up And I hold out my spare hand as if I am walking along a trampoline Rather than the solid cement surface of the sidewalk. You will see that As I reach each aisle in the store I stop And breathe And check my list again As I try to reach through the fog to find the memory of what I’m cooking this week and which cereal my kids like the best. And as I find my purse to pay I fumble and drop my card on the floor. Every single time. I look normal But I’m not. Look a little closer And you’ll see. Tami Grosset, MdDS Warrior Age at onset: 31 I was living in England at the time (2002?) but now live in Canada. Have a story to share? See the Submission Guidelines for writing tips and submission instructions. You May Also Be Interested In: Coping with Mal de Débarquement Syndrome Mal de Débarquement Syndrome Help Related posts: Cursed by the Metro Meet invisible illness warrior and young mother of three, Emily.
Thank you for your wonderful poem. I know how you feel. My age at onset was 65 and how I am 71. It has been a long six yrs.
Hi Linda Sue Burge! I just read your comment& responding! I came down with MdDS at 63 & I am now 70. 7 years living with MdDS . Was using medication to help but had to get off of it cause now on opiad for severe arthritis & a neck that has fused on its own. Not whatI envisioned living like at 70. I drink alot of Ginger ale for nausea & take Ginger root also for nausea related to dizziness. Have gone to several Drs with no luck in treating it except for the Clonazapam that was prescribed for it. I just keep on rocking on! Prey for a cure!