More Stories

Doug’s Strange Days

In March of 2013, my wife and I enjoyed a 7 day Caribbean cruise. I consider us veteran cruisers as we have taken eight or nine cruises in the past. I never experience motion sickness during a cruise, however I always experience the feeling of being still on the ship after disembarking for a few […]

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Brandy’s Not-from-a-Cruise MdDS Story

My MdDS began in December 2012. I didn’t know what it was and kept getting misdiagnosed. My instinct was that it could have been brought on by playing for long periods of time on the Nintendo Wii with my kids. I knew that playing some of those games tricked my brain into thinking I was […]

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Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment

WARNING: this is a long post. If you have MdDS and are bothered by scrolling, we recommend printing to read offline. To print Mickie’s story, press Command+P on a Mac or Control+P on a PC. My name is Mickie Agee and I live in Nashville, Tennessee. For our 40th Anniversary, my husband Mike and I treated ourselves […]

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Submit Your MdDS Story

MdDS is an invisible illness but that doesn’t mean you are. Share your experiences with others and tell us your story.

Send a document or include the narrative in an e-mail to mddsfoundation@yahoo.com. A Board Member will reply to you before it is published. The following guidelines are designed to help you write your story.

Submission Guidelines

Guidelines for Submitting Your “Faces of MdDS” Story

Include only information that you feel would be helpful to professionals or others living with the disorder. For example:

  • Describe the precipitating event(s). Try to be brief so those with visual sensitivity don’t have to scroll too much.
  • Include the length and conditions of the motion experience or the circumstances surrounding a spontaneous onset such as recent childbirth, history of migraines, etc.
  • Explain how you received a diagnosis or lack thereof.
  • Describe treatments that you have tried and how they affected you. Please note that medication dosages will be redacted so the information cannot be misconstrued as medical advice.
  • Describe how MdDS affects your life including your family life, employment, and activities.
  • Include an appropriate picture, whether of yourself or meaningful to the narrative.

Submit Your Story