Be seen. Be heard. Share your story.
We invite you to share your personal story of how MdDS has impacted you. When published to our blog or newsletter, your story can enlighten those who are unfamiliar with the disorder, including medical professionals, and also help others living with it. This page is designed to guide you in your storytelling. The questions are thought-starters, and you do not have to answer every one.
The Foundation reserves the right to edit for grammar, story flow, and other reasons but will not alter your story’s intent. Links to other websites may be removed. We strive to show the MdDS community that there is hope. If you are feeling down, please share in our online group to get the support you need. You are not alone.
Need inspiration? Read the featured stories below or check out our blog.
As a result of the challenges in learning about and adjusting to life with MdDS, Roger and I began a crusade to increase awareness about the disorder.
I have been suffering from MdDS since I was a child. It has got gradually worse as I got older. When I step out of an elevator I feel I am bouncing up and down inside for days after. It is very erratic especially when…
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior