1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! Here are a few submissions by MdDS warriors to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition, which challenged individuals to use social media or art to effectively communicate and educate people about rare diseases.
Hello This Is Me, is an imploring poem by Crystal Beard that will leave you with lingering thoughts and imagery. It first appeared on the MdDS Foundation blog on Monday, November 12, 2018.
Life Raft, a story-telling booklet by Kimberly Warner, offers an intimate and honest look at what it’s like to live with a rare, chronic disorder. Take the journey from discovery to building a life raft… filled with cats…by visiting Kimberley’s website www.liferaftmdds.com.
Miranda McComber’s message is for MdDS warriors and every other 1-in-10 suffering with a rare condition. She wants you to know, “We all deserve the best quality of life.” Every. Person. Matters.
Thank you for reading this broadcast. Please stand by for an important Matching Challenge announcement…