Celeste’s Journey: a decade with MdDS MdDS Foundation 2:32 pm Faces of MdDS 6.15.2015 Celeste’s Journey: a decade with MdDS Celeste, a pastor’s wife, shared her history of remissions and relapses with us, and we’d like to share it with you. From 2003 through 2013, this is her case history. The following is something I wrote several years ago concerning my years with MdDS. I am sharing it here because many have asked questions. At the […] Read More
Sky, Sea & Me MdDS Foundation 8:00 am Raising Awareness, art, Faces of MdDS 4.24.2015 Sky, Sea & Me Since Oct 2014, I feel stuck in a space somewhere between the sky and the sea. As is the case for most of us, MdDS invaded my life once my feet touched the ground after a one-week cruise. Since the variation and intensity of my symptoms continue to be as unpredictable as the weather, I […] Read More
Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment MdDS Foundation 9:31 pm Faces of MdDS 4.3.2015 Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment WARNING: this is a long post. If you have MdDS and are bothered by scrolling, we recommend printing to read offline. To print Mickie’s story, press Command+P on a Mac or Control+P on a PC. Then don’t forget to share it!Rocking and Swaying After a CruiseMy name is Mickie Agee and I live in Nashville, Tennessee. For […] Read More
Robert’s Story: Self-Diagnosed 36 yr-old Atlantan MdDS Foundation 3:00 pm Faces of MdDS 2.16.2015 Robert’s Story: Self-Diagnosed 36 yr-old Atlantan My name is Robert Lupo, and I live in Decatur, Georgia. I am a 36 year old male who has been experiencing Mal de Debarquement for a little over two years. I left a concert on January 1st 2013 and have been experiencing this syndrome ever since. Throughout the first couple months of experiencing it […] Read More
"My disorder may be invisible, however, I refuse to be." MdDS Foundation 7:00 am Faces of MdDS 8.1.2014 "My disorder may be invisible, however, I refuse to be." My name is Joddie. I am a 47 yr old wife, mother of 3 and grandmother of 3. In November of 2011, I drove from my home in Houston, Texas to Duncan, Oklahoma (a 6 hour drive) to visit a sick relative. Read More
Annual trip to Lake Powell triggers episodic MdDS for M. MdDS Foundation 8:00 am Faces of MdDS 7.8.2014 Annual trip to Lake Powell triggers episodic MdDS for M. In September of 2010, my life at 46 was chugging along at a fine pace. My family is lucky enough to take an annual trip to Lake Powell, Utah but the one in 2010 changed my life forever. This particular trip was our 13th and nothing was out of the ordinary, except prior to going I was […] Read More
Tom’s story: relief from the rocking while hitting the road again MdDS Foundation 3:30 pm Faces of MdDS 3.13.2014 Tom’s story: relief from the rocking while hitting the road again I am – it seems – one of the rarer male cases. Read More
Mia’s Story and a Sweet Surprise MdDS Foundation 8:00 am Faces of MdDS 2.22.2014 Mia’s Story and a Sweet Surprise Several years ago, my family and I went on vacation in the mountains. The drive was about 8 hours long. Five days later, we took a 3-hour flight home. Now, I don’t know whether it was the drive or the flight, but I do know that when I got home, I began feeling different. I began […] Read More
