Living with MdDS Sheryl Soffer 9:21 am Case Histories 8.5.2016 Living with MdDS What Living with Mal de Débarquement Syndrome Feels LikeI was thinking about some of my struggles (big and small) in my day-to-day MdDS life and started writing about the things that I’m hoping to have back in my life one day soon.I am hoping for the day…When I can shower without having one hand on […] Read More
Cursed by the Metro MdDS Foundation 1:28 pm Faces of MdDS 3.18.2016 Cursed by the Metro “I believe you.” These can be the most powerful words you can say to someone who is crying each day desperate for the world to take them seriously. It is true when they say that you only realize the value of something when it is lost. I do not think that many people appreciate the […] Read More
Inside it’s a nightmare, but I am a Warrior, every day. MdDS Foundation 9:36 pm Faces of MdDS 9.29.2015 Inside it’s a nightmare, but I am a Warrior, every day. I am a 37 year old female, living in Florida. 2006 was the first time I experienced this feeling of what I called “dizziness.” Read More
Celeste’s Journey: a decade with MdDS MdDS Foundation 2:32 pm Faces of MdDS 6.15.2015 Celeste’s Journey: a decade with MdDS Celeste, a pastor’s wife, shared her history of remissions and relapses with us, and we’d like to share it with you. From 2003 through 2013, this is her case history. The following is something I wrote several years ago concerning my years with MdDS. I am sharing it here because many have asked questions. At the […] Read More
Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment MdDS Foundation 9:31 pm Faces of MdDS 4.3.2015 Mickie’s Journey from Mal de Debarquement Syndrome to Disembarkment WARNING: this is a long post. If you have MdDS and are bothered by scrolling, we recommend printing to read offline. To print Mickie’s story, press Command+P on a Mac or Control+P on a PC. Then don’t forget to share it!Rocking and Swaying After a CruiseMy name is Mickie Agee and I live in Nashville, Tennessee. For […] Read More
"My disorder may be invisible, however, I refuse to be." MdDS Foundation 7:00 am Faces of MdDS 8.1.2014 "My disorder may be invisible, however, I refuse to be." My name is Joddie. I am a 47 yr old wife, mother of 3 and grandmother of 3. In November of 2011, I drove from my home in Houston, Texas to Duncan, Oklahoma (a 6 hour drive) to visit a sick relative. Read More
Annual trip to Lake Powell triggers episodic MdDS for M. MdDS Foundation 8:00 am Faces of MdDS 7.8.2014 Annual trip to Lake Powell triggers episodic MdDS for M. In September of 2010, my life at 46 was chugging along at a fine pace. My family is lucky enough to take an annual trip to Lake Powell, Utah but the one in 2010 changed my life forever. This particular trip was our 13th and nothing was out of the ordinary, except prior to going I was […] Read More
Tom’s story: relief from the rocking while hitting the road again MdDS Foundation 3:30 pm Faces of MdDS 3.13.2014 Tom’s story: relief from the rocking while hitting the road again I am – it seems – one of the rarer male cases. Read More
