Hello, This Is Me MdDS Foundation 2:45 pm Raising Awareness, art 11.12.2018 Hello, This Is Me 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me. Read More
I Look Normal, by Tami G. a Contributing Writer 2:55 pm Faces of MdDS 9.10.2018 I Look Normal, by Tami G. I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […] Read More
A Guide for Our Caregivers a Contributing Writer 6:00 am Guide for Caregivers 6.3.2018 A Guide for Our Caregivers Mike Nelson, full-time caregiver to his wife and also a person with MdDS, shared this helpful guide to help you navigate life with MdDS. Read More
We can do this. I believe in you! ~ Katie a Contributing Writer 5:23 pm Faces of MdDS 2.28.2018 We can do this. I believe in you! ~ Katie My name is Katie Miller, and I have had MdDS since 2002. I took two short, uneventful flights on a Friday and two similar flights back on the following Sunday. I woke up that Monday with the unnerving sensation of walking on mattresses, and it looked like the walls were moving. I had absolutely no […] Read More
Be Still: a Poem by Farzleen a Contributing Writer 6:00 am Raising Awareness, Faces of MdDS 2.25.2018 Be Still: a Poem by Farzleen I am sharing my experience with fellow sufferers of this misunderstood condition because of how it took close to a year before a proper diagnosis was obtained after undergoing many tests, how frustrating and depressing it was prior to that not knowing what was actually happening to me, and for having people closest to me […] Read More
“Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered. a Contributing Writer 4:00 am Faces of MdDS 2.23.2018 “Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered. In September 2017, my husband, my two sons (ages 20 and 21) and myself went on our first cruise, two weeks before the canaries Portugal Spain. All was well on the cruise, none of us were sea sick, but we did have rough days around the bay of biscay. On return home, my two sons […] Read More
LeeAnne suffers with dizziness that isn’t vertigo. a Contributing Writer 4:00 am Faces of MdDS 2.19.2018 LeeAnne suffers with dizziness that isn’t vertigo. After my third cruise, I never got my land legs back. I saw my family doctor and explained my symptoms to him and he referred me to two neurologists; one said it was an ongoing migraine and the other said vertigo. Read More
There is always hope. Never give up. ~ Jodi a Contributing Writer 4:00 am Faces of MdDS 2.15.2018 There is always hope. Never give up. ~ Jodi My name is Jodi Leffue, and I am from Franklin County, Virginia. In August 2017, I attended a family vacation on a cruise. I had a wonderful time on the cruise. I noticed I could feel the ship rock but was able to still enjoy myself. On the excursions, I still had the sensation of […] Read More
