MdDS Balance Disorder Foundation

Dedicated to finding the cause and cure for MdDS

 

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Mal de Debarquement Syndrome (MdDS) is a rare balance disorder that most often develops following an ocean cruise, other type of water travel, or motion experience including plane flights, and train travel. For a few, there is no known motion event; the onset appears to be spontaneous. MdDS persists for months to years.  

Common symptoms include a  persistent sensation of motion such as rocking, swaying, and/or bobbing.  This sensation of motion is often associated with fatigue, difficulty maintaining balance, and difficulty concentrating (impaired cognitive function). Often, the motion sensation seems to disappear when riding in the car or participating in other motion experiences.

           

Official US Rare Disease Day Partner 

    February 28, 2010

Global Events to Increase Awareness

  Alone we are Rare.

                             Together we are Strong.   


 
UK

 

New MdDS Research Study
Yoon-Hee Cha, MD, has been awarded a three year grant by the National Institutes of Health (NIH) to conduct clinical studies on Mal de Debarquement Syndrome (MdDS). Beginning January 2010, Dr. Cha will receive funding from the National Institute on Deafness and Other Communication Disorders (NIDCD), a NIH institute that supports research on disorders of balance. The award to Dr. Cha (Functional Neuroimaging and Transcranial Magnetic Stimulation in Mal de Debarquement) represents the inaugural use of US federal research dollars to
investigate the cause and potential treatment of MdDS.

 

 Images of Proclamations from Rare Disease Day 2009

MdDS in the News for '09 Rare Diseases Day!

 

 

2010 Alert/Request


 from the


National
 Organization
 for
 Rare Disorders

(NORD)

 

Mystery Diagnosis continues to broadcast, The Woman Who Couldn't Stop Rocking, a true story about MdDS.  

 

Complete
important MdDS surveys
 ...to help us better understand this disorder...

 

                       GoodSearch: You Search...We Give!


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Donations and contributions are tax-deductible as allowed by law.


Informational Brochure  

This site is designed for those suffering from MdDS (Mal de Debarquement Syndrome) and the health care professionals who treat them.  If you have been diagnosed or suspect that you have MdDS or Disembarkment Syndrome, sign up for a free membership at our support site and review or search the thousands of messages from those who suffer from MdDS. Here, you will find caring people who understand what it is like to live with this rare balance disorder; members are from all over the world. Please join us to share and learn from others.

The MdDS Balance Disorder Foundation is an all-volunteer 501(c)(3) nonprofit PA foundation dedicated to promoting awareness of Mal de Debarquement Syndrome and seeking treatments and a cure for people suffering from this disorder.

Helpful Links  
 

Copyright  © 2006-2010,  MdDS Balance Disorder Foundation, Inc. All rights reserved. Unauthorized use prohibited. Copyright materials may not be reproduced in whole or in part by persons, organizations, or corporations without the prior written permission of the MdDS Balance Disorder Foundation. The information contained in this web site is not a substitute for medical advice or treatment.

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ast modified on February 2, 2010