In early 2005, I started having a “twitching” nerve at the base of my neck. Kaiser Hospital in Roseville, CA, gave me several tests. Yes… the doctors looked at me like I was crazy when I described my symptoms to them (ear “fullness”, etc.) and were no help at all. A few months later we moved to the Houston, TX, area and I was diagnosed with TMJ which, after an expensive year of treatment, turned out not to be the problem. Saw a chiropractor, acupuncturist, you name it!
Finally went to a neurologist and he prescribed moist head massages and some exercises, plus a drug called Baclofen. After 8 sessions of this, I was barely able to walk! Ended up at the hospital for 4 days in Houston and was given Lyrica, Clonazepam, Mobic, and Fenofexidrine… ALL AT ONCE! Diagnosed with “Inflammation of the fifth nerve”. When I got back home I was a ZOMBIE for about a year, sleeping all the time. Finally was able to stop all the drugs except Clonazepam.
Then I started feeling like I was “walking on a mattress”. Looking back I think this must have been a reaction to all those drugs! To make a long story shorter, I have had 3 MRIs, seen an ENT (yes, all the awful tests). He sent me to a balance therapist, and I did all her tests with no problem. She said my balance was fine and told me about MdDS, but I hadn’t been on a cruise for two years! She said in 14 years as a therapist, she’d never seen anyone like me. Since that time I just about gave up! I am now 80 years old and thought my next few years would be ruined from this MdDS thing.
However, I learned about “spontaneous onset” on your site and realize I am not alone; not all MdDS is motion-triggered! I have lost about 7-8 lbs. recently, have been taking multivitamins, walking the dog around the neighborhood, and doing “leg-lifts”, etc. I actually couldn’t wear any of my old shoes and have been wearing bootie-type sox (the kind with little spongy circles on the bottom) in the house. That is, until I finally found some slip-on, stretchy canvas ones at Walmart. $10! They have a ballet-type sole, totally flat (they’re called “Lynley“). One morning the “mattress-walking” sensation was gone!!!! HAPPY DAY! I can actually balance on one foot now! I am still wearing sox around the house but shoes feel fine when I go out. After 8 years… It’s like a miracle! Maybe it is the exercise and the “massaging” effect of those spongy dots on the sox that cured me. I have no other explanation to offer.