Press Release: $150,000 Donation to Fund Vital Research

Donation to Fund Vital Research into Mal de Debarquement Syndrome

Shannondell, PA – November 20, 2013 – The MdDS Balance Disorder Foundation is pleased to announce that it has received a $150,000 donation from Ellen Kaye to fund vital research into the cause of and a cure for Mal de Débarquement Syndrome. This donation, along with funds generated by direct donations to the Foundation, will support ongoing research efforts to provide relief for those living with Mal de Débarquement Syndrome, a rare disorder of motion perception in which sufferers feel rocking, bobbing, sensation that is masked by passive motion. Although it occurs most often after any means of travel including cruise ships, plane flights, and train travel, it can also occur seemingly spontaneously.

In the past 5 years, the Foundation has raised close to $500,000 to support research efforts such as those at the University of California at Los Angeles, Ohio University, and the Laureate Institute for Brain Research. As a result of this research, current medical information about this rare disorder is being generated, and several articles have been accepted as peer-reviewed publications for distribution to medical professionals and the public. (For a complete listing of scientific journal entries, visit

Click to download this Press Release (PDF)

Donation Press Release nov2013


Discussion Policy
  1. Susie

    Your donation means alot and is very generous. Thank you again!

  2. janis kahle

    Ellen Kaye, Thank you so much for your generous donation to MdDS. God bless you. You give us hope that someday there will be a cure for this debilitating syndrome.

  3. Sandy Brignac

    Ellen Kaye, THANK YOU for such a generous gift. This just gives us so much hope for a cause and a cure.You have just given us that one step closer to seeing it happen. Bless you!!!

  4. Briana

    Thank you so very much. No words can truly express our gratitude. Your generosity gives us hope that we will make it one step closer to finding a cure to this life altering syndrome.

  5. Thank you, Ellen Kaye, for your generous donation to fund continued research into the cause and treatment of MdDS.

  6. Betty Pecore

    Thank you so very much, Ellen Kaye, for your magnificent donation to aid the MdDS sufferers. We couldn’t be more grateful!

  7. Cindy (3rd timer, still rockin) SE WI.

    GOD BLESS you Ellen Kaye-There are so many of us, we pray for our good old days, when we were not at sea, to feel normal again. Your generous donation brings joy, thankfulness, and hope to us. May the Lord Bless you with Goodness, Health, and his Love.

  8. Julie Lipp

    Thank you Ellen Kaye for your generous donation towards the research of MdDS and hopefully a cure. I like to believe that a cure can happen in my life time, have to have HOPE.

  9. Polly

    We are all so grateful for any research that will help people who are newly diagnosed with MdDS – and maybe some of us ‘old timers’ too. Just knowing that someone cares is very beneficial – thank you, thank you, thank you : )

  10. Karen Garcia

    Thank you, thank you, thank you!!! This will help so much with the research that is crucial in helping uncover the cause and cure for this condition. Can’t thank you enough!

  11. Linda

    Very special thanks to Ellen Kaye. Your donation puts us so much closer to better understanding MdDS…the cause and the cure! Hope still floats.

  12. Flora Riley

    Thank you so much for such a generous offer.

  13. Joy Sheerer

    God bless your heart, Ellen. Thank you for giving us hope!

  14. Marie

    Thank you Ellen Kaye!!!

  15. Deb

    Thank you, Ellen Kaye. Because of you research will move in the right direction.

  16. Andrea

    Ellen Kaye, Thank you!!!!!!!!!!!!!!!! An amazing, wonderful gift.

  17. Eileen Fitzgerald

    This is wonderful news! Ellen, thank you so much for your generous donation. Words can’t express how much this means to so many of us.

  18. Terrie

    Ellen Kaye, We are so grateful for your generous support. We pray to find a cause and a cure. I have been diagnosed twice with MdDS. I’ve been living with it for going on 4 years. People like you are a blessing. Terrie

  19. Angela Ghilarducci

    Thank you Ellen for your Generous and supporting donation. It would be so nice to just be acknowledged by a M.D. as a true disorder instead of just plain crazy one day. Thank you for taking us a step closer to that.

  20. Tamara

    Dear, Wonderful, Generous Ellen: Thank you so much for your overwhelmingly generous donation to help all of us who suffer with this disorder. It brings tears to my eyes to realize someone could be so caring and willing to help in this manner. I wish I could do more than just tell you how grateful I am. Across the ENTIRE world are people who will be helped one day by the research you are helping to fund. I hope knowing that tickles you right down to the very tips of your toes. May your generosity be returned to you in many ways.

  21. Marla Cruise

    Thank you Ellen Kaye for your most generous donation for research into the cause and cure for MdDS.

  22. Good News!!! I hope some of the research money can be directed to Florida. We have lots of places that do research, including the Mayo Clinic in Jacksonville, but nobody here even recognizes that such a malady exists. I long for the day…

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