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Living with Mal de Débarquement Syndrome for eight years, community member Debbie Whitmer captures the profound need for empathy, connection, and hope in her poem, “My Poem For MdDS Sufferers.” Originally shared on our support group, MdDS Friends, her words serve as a reminder of the strength found in mutual support. And she offers a message of encouragement to everyone navigating the ongoing challenges of MdDS.

My Poem For MdDS Sufferers

If people only knew what this pain feels like,
They would be more compassionate and more childlike.
They would believe all the symptoms are really true,
And they would help to refresh like the morning dew.

When people are understanding it gives ease to those who suffer,
Because it gives comfort and empathy like a loving mother.
Please have understanding for those who are suffering,
Because you could be next to find yourself shuddering.

Always treat people like you want to be treated,
Because in the end you will reap what is needed.
For the suffering I say, “Never lose hope and keep hanging on”,
Because when you are finally healed, you will shout, “Well done!”