Hello, This Is Me MdDS Foundation 2:45 pm art, Raising Awareness 11.12.2018 Hello, This Is Me 1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me. Read More
Picture Perfect a Contributing Writer 2:29 pm Raising Awareness, Faces of MdDS 9.22.2018 Picture Perfect After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor. Read More
Be Still: a Poem by Farzleen a Contributing Writer 6:00 am Raising Awareness, Faces of MdDS 2.25.2018 Be Still: a Poem by Farzleen I am sharing my experience with fellow sufferers of this misunderstood condition because of how it took close to a year before a proper diagnosis was obtained after undergoing many tests, how frustrating and depressing it was prior to that not knowing what was actually happening to me, and for having people closest to me […] Read More
Be Ready to Raise MdDS Awareness on Rare Disease Day a Contributing Writer 3:00 pm Raising Awareness 1.28.2018 Be Ready to Raise MdDS Awareness on Rare Disease Day To help you, we set up a store on Zazzle. From tees to mugs, there are many items to raise awareness of MdDS – and you can customize them all!The purpose of the store is to raise awareness and help people who are battling Mal de Débarquement Syndrome, and those who have no idea of their illness. […] Read More
Perfect for JAM. Perfect for You. MdDS Foundation 4:36 pm Raising Awareness 6.5.2017 Perfect for JAM. Perfect for You. Newly available, this bangle bracelet is perfect for raising awareness during June Awareness Month (JAM) or any time.The charm says, “Stop the Rock” and features an awareness ribbon in silver and blue, the colors for neurological diseases and disorders like MdDS. Feel free to change the charm’s blue background to your favorite color, and make […] Read More
JAM. Spread it! MdDS Foundation 6:00 am Raising Awareness 5.29.2017 JAM. Spread it! Did you know that June is our Awareness Month? Well, now you do and we’d like you to join us this JAM. MdDS Foundation informational brochures are a great way to spread the word and educate others about MdDS. To receive free brochures, send an email with your complete mailing address and quantity needed to […] Read More
Raise Your Voice: #RareDiseaseDay 2016 is Coming MdDS Foundation 6:00 am Raising Awareness 1.4.2016 Raise Your Voice: #RareDiseaseDay 2016 is Coming By definition, a rare disease affects a small segment of the population, yet combined the 7,000 known rare diseases affect 30 million people — that’s 1 in 10 of us. Many Americans do not realize how common rare diseases are and that our community has tremendous unmet medical needs. On February 29, join together to raise your […] Read More
Sky, Sea & Me MdDS Foundation 8:00 am Raising Awareness, art, Faces of MdDS 4.24.2015 Sky, Sea & Me Since Oct 2014, I feel stuck in a space somewhere between the sky and the sea. As is the case for most of us, MdDS invaded my life once my feet touched the ground after a one-week cruise. Since the variation and intensity of my symptoms continue to be as unpredictable as the weather, I […] Read More
