We can do this. I believe in you! ~ Katie

My name is Katie Miller, and I have had MdDS since 2002. I took two short, uneventful flights on a Friday and two similar flights back on the following Sunday. I woke up that Monday with the unnerving sensation of walking on mattresses, and it looked like the walls were moving. I had absolutely no […]

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Be Still: a Poem by Farzleen

I am sharing my experience with fellow sufferers of this misunderstood condition because of how it took close to a year before a proper diagnosis was obtained after undergoing many tests, how frustrating and depressing it was prior to that not knowing what was actually happening to me, and for having people closest to me […]

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“Why do I feel like I am on a boat? Voila MdDS,” Elizabeth discovered.

In September 2017, my husband, my two sons (ages 20 and 21) and myself went on our first cruise, two weeks before the canaries Portugal Spain. All was well on the cruise, none of us were sea sick, but we did have rough days around the bay of biscay. On return home, my two sons […]

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LeeAnne suffers with dizziness that isn’t vertigo.

After my third cruise, I never got my land legs back. I saw my family doctor and explained my symptoms to him and he referred me to two neurologists; one said it was an ongoing migraine and the other said vertigo.

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There is always hope. Never give up. ~ Jodi

My name is Jodi Leffue, and I am from Franklin County, Virginia. In August 2017, I attended a family vacation on a cruise. I had a wonderful time on the cruise. I noticed I could feel the ship rock but was able to still enjoy myself. On the excursions, I still had the sensation of […]

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Meet invisible illness warrior and young mother of three, Emily.

What caused my MdDS? Not a cruise. Not a windy drive. It was a medication given to me while I was under anesthesia having an operation. I was put under general anesthesia to remove a kidney stone that had been lodged in my right ureter for three and a half months. A pretty routine procedure, it […]

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Diagnosed with vestibular neuritis then possible MS. Does Julie’s story sound familiar?

After a four-day kayak trip in north Vancouver Island, August 2016, which also included flights and bus, I came back home and started working. I knew something was not quite right as I developed dizziness which then turned to nausea and vomiting which required hospitalization for five days. CT and MRI read as normal. Was […]

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Meet Jim, long-time MdDS Warrior from Belfast.

I have been suffering from MdDS since I was a child. It has got gradually worse as I got older. When I step out of an elevator I feel I am bouncing up and down inside for days after. It is very erratic especially when…

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