Disability or Superpower? a Contributing Writer 11:33 am Faces of MdDS 11.29.2024 Disability or Superpower? It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do. Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Raising Awareness, Advocacy, Research 11.22.2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
A Journey Through Uncharted Waters: My Life with MdDS a Contributing Writer 9:52 am art, Faces of MdDS 11.9.2024 A Journey Through Uncharted Waters: My Life with MdDS Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth. Read More
