Disability or Superpower?
It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do.
Year: 2024
Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
A Journey Through Uncharted Waters: My Life with MdDS
Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth.
MdDS after a Cruise in 2019. 🚢 It’s 2024.
When I found out I wasn’t alone in having MdDS, knowing many suffered and many had remissions or found ways to feel better, it helped me change my attitude. ~Kim
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
“MdDS – the struggle is real” by Dawn
“I hope to help people understand how debilitating MdDS is and how frustrating it is to look fine on the outside but silently suffer.” ~Dawn #thestruggleisreal
“Navigating Life with MdDS: My Journey to Recovery and Hope” by Yoreim Virella
“This journey has given me a new perspective on life,… You are stronger than you think, and your story can inspire and help others.” Yoseim