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Home / Blog / Advocacy

Category: Advocacy

NEW Severity Scale Simplifies MdDS Symptom Tracking MdDS Foundation 1:26 pm
Advocacy, I Am Empowered, Announcements 4.3.2025

NEW Severity Scale Simplifies MdDS Symptom Tracking

Remarkably simple to use and available as a book mark. 🖨️ Or download and print to start using today. Bridge the communication gap between doctors and patients!

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Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am
Raising Awareness, Advocacy, Research 11.22.2024

Part 2: The 2024 Breakthrough Summit, Tote & PAOs

Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.

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Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am
Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024

Alone we are Rare. Together we are Strong.

The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.

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