Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm Raising Awareness, Our Impact, Advocacy, Patient Registry, I Am Empowered 11.12.2025 Breakthrough Summit Report: Turning Takeaways into Action Conference Success ✅ More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. Want to know what this means for you? Read the full post now! Read More
NEW Severity Scale Simplifies MdDS Symptom Tracking MdDS Foundation 1:26 pm Advocacy, I Am Empowered, Announcements 4.3.2025 NEW Severity Scale Simplifies MdDS Symptom Tracking Remarkably simple to use and available as a book mark. 🖨️ Or download and print to start using today. Bridge the communication gap between doctors and patients! Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Raising Awareness, Advocacy, Research 11.22.2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 11.16.2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
