A Guide for Our Caregivers a Contributing Writer 6:00 am Guide for Caregivers 6.3.2018 A Guide for Our Caregivers Mike Nelson, full-time caregiver to his wife and also a person with MdDS, shared this helpful guide to help you navigate life with MdDS. Read More
Global Genes Project Features MdDS Patient Story MdDS Foundation 12:46 pm Raising Awareness, Faces of MdDS 11.19.2012 Global Genes Project Features MdDS Patient Story Although the role of genetics is not yet understood, the Global Genes Project joins the MdDS Foundation in advocating for those suffering with MdDS. They’ve published the story of Mike Nelson. Rare among the rare, Mike is one of our growing number of male members. You can read his story here: http://globalgenes.org/rare-disease-mal-de-debarquement-syndrome-often-affects-quality-of-life/ Read More