A Guide for Our Caregivers

If you are a sibling, parent, child, friend, or caregiver to someone dealing with chronic illness, chances are you may ask yourself occasionally — or nonstop — How can I help? As a full-time caregiver to my wife, and also as a person with MdDS, I’ve written this guide which I hope will help you […]

Read More

Global Genes Project Features MdDS Patient Story

Although the role of genetics is not yet understood, the Global Genes Project joins the MdDS Foundation in advocating for those suffering with MdDS. They’ve published the story of Mike Nelson. Rare among the rare, Mike is one of our growing number of male members. You can read his story here: http://globalgenes.org/rare-disease-mal-de-debarquement-syndrome-often-affects-q\ uality-of-life/

Read More