“Don’t Give Up” by Joan W

“I saw every ENT doctor in my area. None of them had ever heard of MdDS.” Refusing to give up, Joan found an otolaryngologist who diagnosed her immediately. Read her story of encouragement. It’s on the blog today.

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“A wobbly tale” by Palm

In spite of the variability, unpredictability and invisibility to others, Palm’s story contributes to the crucially important work of educating each other and the wider public about MdDS.

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Rocking Candles, Giving Back since 2018

For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”

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“Finally found a cure for me” by Laura

“I suffered with this many times but I finally found someone who listened and something that worked for me and got my life back.” Laura’s story on the blog today. Read & Share!

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