A Russian river cruise. An anniversary trip to Paris. Lifelong sailor. Spontaneously. While each of our journeys began differently, we are bound together by the need for diagnosis, treatment and support, and the cure for MdDS.
Greet the new year with a contribution to help us meet this first challenge of 2015. Now through January 20 27, every donation to the Foundation will be matched, dollar-for-dollar up to $1,000! Donations fund vital research into the cause of and a cure for Mal de Débarquement Syndrome. The more research conducted, the more current medical information […]
With the help of some great volunteers, there is now an MdDS awareness bracelet! It’s been an interesting learning experience, but the design, production and US shipping hurdles have all been figured out, and we are now ready to roll them out to the public!* To receive a Stop the Rock! bracelet, simply make a donation of $20 […]
Dear Friends and Family, I am living with a rare condition with an interesting name, Mal de Débarquement Syndrome (MdDS). What is that you ask? Mal de Débarquement Syndrome or Disembarkment Syndrome is a neurological disorder that most often develops following an ocean cruise. Less often, a perceived sense of motion follows air, train, or auto […]
June is MdDS Awareness Month, so the Foundation and its volunteers have been working doubly hard to spread awareness of Mal de Débarquement Syndrome. Our rare disorder with the strange French name is now recognized by organizations such as the NIH, NORD and, just recently, the Rare Disease United Foundation. But we need to work […]
MAY 15: The survey is now closed. In an effort to collect current data, a new survey is underway. This survey closes in two weeks, so if you have or suspect that you have MdDS don’t delay — complete the survey. We hope to collect enough data to analyze, and to include key information in the June newsletter. The newsletter […]