Your Story Matters: Let’s Get MdDS in the Headlines MdDS Foundation 12:09 pm I Am Empowered, Raising Awareness 27/02/2026 Your Story Matters: Let’s Get MdDS in the Headlines MdDS is gaining media attention. Keep the momentum! Share your story with local media to highlight real-life impacts. Use this template! Read More
Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm I Am Empowered, Patient Registry, Advocacy, Our Impact, Raising Awareness 12/11/2025 Breakthrough Summit Report: Turning Takeaways into Action More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. 👀 Want to know what this means for you? Read the full post now! Read More
Dear Reader, MdDS Foundation 8:04 pm Raising Awareness, Faces of MdDS 07/06/2025 Dear Reader, Join us as we raise awareness, so more people walking around undiagnosed or misdiagnosed may find support in our community. If you win the zebra, take it everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale! Read More
Part 2: The 2024 Breakthrough Summit, Tote & PAOs MdDS Foundation 10:06 am Raising Awareness, Advocacy, Research 22/11/2024 Part 2: The 2024 Breakthrough Summit, Tote & PAOs Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes. Read More
Alone we are Rare. Together we are Strong. MdDS Foundation 9:00 am Raising Awareness, Advocacy, Faces of MdDS, Research 16/11/2024 Alone we are Rare. Together we are Strong. The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog. Read More
A Journey Through Uncharted Waters: My Life with MdDS a Contributing Writer 9:52 am art, Faces of MdDS 09/11/2024 A Journey Through Uncharted Waters: My Life with MdDS Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Our Impact, Raising Awareness, Announcements, Faces of MdDS, Research, News 08/07/2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
“MdDS – the struggle is real” by Dawn a Contributing Writer 12:23 pm Raising Awareness, Faces of MdDS 30/06/2024 “MdDS – the struggle is real” by Dawn “I hope to help people understand how debilitating MdDS is and how frustrating it is to look fine on the outside but silently suffer.” ~Dawn #thestruggleisreal Read More
