We are pleased to introduce you to our Provider Outreach Committee, which works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible.
Along with several annual donors, since 2009 a small group of people have unknowingly become a team of rare champions. These friends and family members have continually shown their support of the MdDS community and their commitment to our mission and goals. They’ve proven that small donations over time are just as impactful as any […]
It’s National Volunteer Week! Today we’re shining a light on Breanna by sharing her story and experience with you. Hello, my name is Breanna Larsen and I am a twenty-two year old native Texan who loves spending time with my family and friends, going on adventures, playing with my puppies and trying to spread a little sparkle everywhere I go. […]
The MdDS Foundation sincerely thanks all the supporters and volunteers that helped make this a successful year. Without you, these accomplishments would not be possible. Please take a few minutes to read these highlights. Top Media Moments During the Rare Disease Day TweetChat with NORD and ABC, 3,212 tweets were sent with a potential exposure of 28.2 million. Joy Sheerer appeared with Dr. […]