Dear Friends and Family, I am living with a rare condition with an interesting name, Mal de Débarquement Syndrome (MdDS). What is that you ask? Mal de Débarquement Syndrome or Disembarkment Syndrome is a neurological disorder that most often develops following an ocean cruise. Less often, a perceived sense of motion follows air, train, or auto […]
In September of 2010, my life at 46 was chugging along at a fine pace. My family is lucky enough to take an annual trip to Lake Powell, Utah but the one in 2010 changed my life forever. This particular trip was our 13th and nothing was out of the ordinary, except prior to going I was […]
Join the walk to Stop the Rock! This year the MdDS walk – and fun run – is being hosted in Pennsylvania, home state of Foundation president, Marilyn Josselyn. Independently organized by our fantastic volunteers in Harrisburg, the walk is set for September 27. It’s a leisurely 3K route, and the trails at beautiful Shank Park are […]