The MdDS Foundation sincerely thanks all the supporters and volunteers that helped make this a successful year. Without you, these accomplishments would not be possible. Please take a few minutes to read these highlights. Top Media Moments During the Rare Disease Day TweetChat with NORD and ABC, 3,212 tweets were sent with a potential exposure of 28.2 million. Joy Sheerer appeared with Dr. […]
With the help of some great volunteers, there is now an MdDS awareness bracelet! It’s been an interesting learning experience, but the design, production and US shipping hurdles have all been figured out, and we are now ready to roll them out to the public!* To receive a Stop the Rock! bracelet, simply make a donation of $20 […]
The following update is provided by Mingjia Dai, PhD., Mount Sinai School of Medicine. Oct. 30, 2014 — Since the publication on the study of the treatment for patients with MdDS, we have further explored VOR Readaptation for patients with classic MdDS (17 patients), spontaneous MdDS (no clear cause, 9 patients) and “MdDS” from head trauma (2 patients). […]
The Foundation would like to acknowledge the following donations made by friends and loved ones. We thank you for your care and support. Honor Donations Elaine & Edward Schlissel – In honor of my fellow southeast rockers Antoinette Salcedo – In honor of Charleen Anomanni Louis & Ethel Ivens – In honor of Marilyn Josselyn Irene Garbo – In honor of […]
My name is Joddie. I am a 47 yr old wife, mother of 3 and grandmother of 3. In November of 2011, I drove from my home in Houston, Texas to Duncan, Oklahoma (a 6 hour drive) to visit a sick relative.
Dear Friends and Family, I am living with a rare condition with an interesting name, Mal de Débarquement Syndrome (MdDS). What is that you ask? Mal de Débarquement Syndrome or Disembarkment Syndrome is a neurological disorder that most often develops following an ocean cruise. Less often, a perceived sense of motion follows air, train, or auto […]
In September of 2010, my life at 46 was chugging along at a fine pace. My family is lucky enough to take an annual trip to Lake Powell, Utah but the one in 2010 changed my life forever. This particular trip was our 13th and nothing was out of the ordinary, except prior to going I was […]
Join the walk to Stop the Rock! This year the MdDS walk – and fun run – is being hosted in Pennsylvania, home state of Foundation president, Marilyn Josselyn. Independently organized by our fantastic volunteers in Harrisburg, the walk is set for September 27. It’s a leisurely 3K route, and the trails at beautiful Shank Park are […]