Finding My Footing: How I Regained Control After an MdDS Diagnosis MdDS Foundation 1:40 pm Faces of MdDS 06/30/2026 Finding My Footing: How I Regained Control After an MdDS Diagnosis A deeply personal story of resilience and recovery, this a powerful reminder of the strength within our community. Dakota shares what helped him the most and offers hope. Read his story on the blog! Read More
MdDS Patient Registry: Research Designed with You in Mind MdDS Foundation 10:27 am I Am Empowered, Patient Registry 03/17/2026 MdDS Patient Registry: Research Designed with You in Mind Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights. Read More
Your Story Matters: Let’s Get MdDS in the Headlines MdDS Foundation 12:09 pm I Am Empowered, Raising Awareness 02/27/2026 Your Story Matters: Let’s Get MdDS in the Headlines MdDS is gaining media attention. Keep the momentum! Share your story with local media to highlight real-life impacts. Use this template! Read More
