Finding Hope and Empathy: “My Poem For MdDS Sufferers” by Debbie Whitmer MdDS Foundation 1:05 pm Faces of MdDS 09/19/2026 Finding Hope and Empathy: “My Poem For MdDS Sufferers” by Debbie Whitmer “If people only knew what this pain feels like…” Living with MdDS for eight years, Debbie Whitmer shares a moving poem on empathy, understanding, and hope within the MdDS community. Read her story and share your thoughts. Read More
Supporting the Next Generation of MdDS Research MdDS Foundation 5:50 pm Announcements, Research 08/12/2026 Supporting the Next Generation of MdDS Research Next Generation Research Grant (NGRG) The MdDS Foundation has partnered with the American Brain Foundation (ABF) to offer the Next Generation Research Grant in Mal de Débarquement Syndrome (MdDS). This two-year, $150,000 award is designed to support and encourage early-career researchers: who are studying MdDS disease mechanisms or translational research specifically designed to develop treatments for […] Read More
Bridging Gaps: Connecting Data and Clinical Outcomes MdDS Foundation 12:00 am PROspective, Research 08/11/2026 Bridging Gaps: Connecting Data and Clinical Outcomes Turning insights into answers: Read how evidence-based research is accelerating targeted treatment solutions. Read More
Finding My Footing: How I Regained Control After an MdDS Diagnosis MdDS Foundation 1:40 pm Faces of MdDS 06/30/2026 Finding My Footing: How I Regained Control After an MdDS Diagnosis A deeply personal story of resilience and recovery, this a powerful reminder of the strength within our community. Dakota shares what helped him the most and offers hope. Read his story on the blog! Read More
MdDS Patient Registry MdDS Foundation 10:27 am I Am Empowered, Patient Registry 03/17/2026 MdDS Patient Registry Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights. Read More
Your Story Matters: Let’s Get MdDS in the Headlines MdDS Foundation 12:09 pm I Am Empowered, Raising Awareness 02/27/2026 Your Story Matters: Let’s Get MdDS in the Headlines MdDS is gaining media attention. Keep the momentum! Share your story with local media to highlight real-life impacts. Use this template! Read More