Hope Twice Found: My 10-Year Battle Back from the MdDS Monster

“You just have to learn to live with it.” We’ve all heard those words, but my journey proves otherwise. After 10 years, a devastating relapse, and a battle back from a stroke, I can finally say: the MdDS monster is gone. Read my full story of hope, the danger of Propofol, and how I found remission twice. 🌊⚓️

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Disability or Superpower?

It’s silly, but sometimes it’s a bit of comic relief that pulls me from despair. My superpower is a special ability, and why I feel the way I do.

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A Journey Through Uncharted Waters: My Life with MdDS

Eleven years ago, Sylvia Hemby’s joyful vacation in Hawaii turned into a challenging experience due to her diagnosis of Mal de Débarquement Syndrome (MdDS). The disorder caused a persistent sense of rocking. Yet, she found solace in creating seashell art, channeling her struggles into beauty and resilience, representing her journey of growth.

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“Don’t Give Up” by Joan W

“I saw every ENT doctor in my area. None of them had ever heard of MdDS.” Refusing to give up, Joan found an otolaryngologist who diagnosed her immediately. Read her story of encouragement. It’s on the blog today.

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