I believe that pictures are the most beautiful things that exist. You are capturing a moment in time that lasts forever. Everything stops for that moment and is still. Little did I know that this picture would be my last ‘still’ moment. I wanted to capture the moment of the wanderlust girl I am, well […]
I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […]
If you are a sibling, parent, child, friend, or caregiver to someone dealing with chronic illness, chances are you may ask yourself occasionally — or nonstop — How can I help? As a full-time caregiver to my wife, and also as a person with MdDS, I’ve written this guide which I hope will help you […]
My name is Katie Miller, and I have had MdDS since 2002. I took two short, uneventful flights on a Friday and two similar flights back on the following Sunday. I woke up that Monday with the unnerving sensation of walking on mattresses, and it looked like the walls were moving. I had absolutely no […]
I am sharing my experience with fellow sufferers of this misunderstood condition because of how it took close to a year before a proper diagnosis was obtained after undergoing many tests, how frustrating and depressing it was prior to that not knowing what was actually happening to me, and for having people closest to me […]
In September 2017, my husband, my two sons (ages 20 and 21) and myself went on our first cruise, two weeks before the canaries Portugal Spain. All was well on the cruise, none of us were sea sick, but we did have rough days around the bay of biscay. On return home, my two sons […]