My resilience saved me. Yours can save you. 💙

My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.

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Life Rocks with Rocking Candles

I’m Kate and I Rock… Literally. In 2018, I developed a neurological disorder Mal de Débarquement. It left me with the constant feeling of rocking and swaying, like I’m on a boat. Basically I never got my land legs back and I live in constant motion. I started making candles and launched Rocking Candles this year to help in some way. The sale of each of my candles, over 700 so far, raises awareness of MdDS and 10% of the proceeds from rockingcandles.com will go the MdDS Foundation!

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Russ’ Busy Day at the Lake

I had just spent the 2016 Memorial Day weekend on my parent’s boat and dock. After leaving the lake, we stopped at a favorite eatery. I finally sat down for the first time and felt “it.” I looked at my wife and asked, “Does the floor feel like it’s moving?”

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The Perfect Storm

Young #MdDSwarrior, Ruthanne survived the Perfect Storm. With the support of Friends and family, she is ready for the next step in her #MdDS journey. Read her story and share to #shinealightonMdDS!

#facesofMdDS #newontheblog #sharingiscaring #mddsJAM

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Picture Perfect

After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor.

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I Look Normal, by Tami G.

I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […]

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