My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.
Author: Warrior & Contributing Writer
I’m Kate and I Rock… Literally. In 2018, I developed a neurological disorder Mal de Débarquement. It left me with the constant feeling of rocking and swaying, like I’m on a boat. Basically I never got my land legs back and I live in constant motion. I started making candles and launched Rocking Candles this year to help in some way. The sale of each of my candles, over 700 so far, raises awareness of MdDS and 10% of the proceeds from rockingcandles.com will go the MdDS Foundation!
I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […]