Perspective

TRIGGER WARNING: this picture I took causes me great anxiety due to the swirls. 😟 But I really want to share it with my story so others who can relate know they aren’t alone. ~

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UN-FUN CLOWN 🤡 by Joanna Richardson

My story is a little different than your traditional MdDS patient, but this is a poem and a drawing I made describing the nonstop dizziness. I would give anything to live in a world that is still. ~Joanna

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Portrait of MdDS, a #selfie

On the outside, no one would know that my world rocks and sways and spins and turns, but on the inside I have to work to remain calm and grounded.

MdDS has forced me to learn to slow down and put my own needs first at times. It has also taught me that life can change in an instant. These are incredible lessons. ~Brittany Ashcraft

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Floating Away

Putting MdDS into words is sometimes so incredibly difficult. I am grateful for this opportunity to be creative and express what I feel on paper. ~Alexis Dolgoff, DPT

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My resilience saved me. Yours can save you. 💙

My onset was spontaneous instead of motion induced. In fact, I was diagnosed shortly after a surgical procedure. Some doctors’ attitudes and an experience at the ER almost broke me. But I didn’t lose hope, got back up on my feet, and regained my strength. I encourage you to see your progress and strength as I did. My resilience saved me. Yours can save you. 💙 Together, let’s continue advocating for ourselves and a cure because I truly believe that one exists.

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Life Rocks with Rocking Candles

After developing Mal de Débarquement in 2018, Kate decided to be part of the solution. She started making candles and launched her business, Rocking Candles. Each candle sold raises awareness of MdDS, and she donates 10% of the proceeds from rockingcandles.com to the MdDS Foundation!

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