Life Rocks with Rocking Candles a Contributing Writer 6:40 pm Raising Awareness, Faces of MdDS 25/11/2020 Life Rocks with Rocking Candles After developing Mal de Débarquement in 2018, Kate decided to be part of the solution. She started making candles and launched her business, Rocking Candles. Each candle sold raises awareness of MdDS, and she donates 10% of the proceeds from rockingcandles.com to the MdDS Foundation! Read More
Russ’ Busy Day at the Lake a Contributing Writer 1:49 pm Faces of MdDS 24/01/2020 Russ’ Busy Day at the Lake I had just spent the 2016 Memorial Day weekend on my parent’s boat and dock. After leaving the lake, we stopped at a favorite eatery. I finally sat down for the first time and felt “it.” I looked at my wife and asked, “Does the floor feel like it’s moving?” Read More
The Perfect Storm a Contributing Writer 2:51 pm Faces of MdDS 28/06/2019 The Perfect Storm Young #MdDSwarrior, Ruthanne survived the Perfect Storm. With the support of Friends and family, she is ready for the next step in her #MdDS journey. Read her story and share to #shinealightonMdDS! #facesofMdDS #newontheblog #sharingiscaring #mddsJAM Read More
One day I hope to return from the sea. a Contributing Writer 11:12 pm Faces of MdDS 07/06/2019 One day I hope to return from the sea. Diane says she is ‘still on the ocean waiting to be rescued’ but has hope of coming home from the sea with the support of MdDS Friends. Read More
You’re not in the boat alone. a Contributing Writer 3:07 pm Faces of MdDS 30/05/2019 You’re not in the boat alone. With her first grandchild on the way, Nancy refuses to let MdDS rule her life. Read More
Picture Perfect a Contributing Writer 2:29 pm Raising Awareness, Faces of MdDS 22/09/2018 Picture Perfect After a day of flying and going up 107 stories to a restaurant in the sky, I felt a panic I had never felt before. It felt like I was walking on a bouncing floor. Read More
I Look Normal, by Tami G. a Contributing Writer 2:55 pm Faces of MdDS 10/09/2018 I Look Normal, by Tami G. I wrote this poem a number of years ago (maybe 5 years ago) and I sometimes post it as a status update. My daughter is no longer a toddler but the rest holds true. ~ Tami Grosset I look normal. I sit in my chair and chat. I giggle and gossip just like I’ve always […] Read More
A Guide for Our Caregivers a Contributing Writer 6:00 am Guide for Caregivers 03/06/2018 A Guide for Our Caregivers Mike Nelson, full-time caregiver to his wife and also a person with MdDS, shared this helpful guide to help you navigate life with MdDS. Read More
