NEW Severity Scale Simplifies MdDS Symptom Tracking
Remarkably simple to use and available as a book mark. 
Or download and print to start using today. Bridge the communication gap between doctors and patients!
Author: MdDS Foundation
Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT
The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do.
Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Rocking Candles, Giving Back since 2018
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
Be seen. Be heard. Read to the bottom.
It’s been a privilege for us to raise awareness through the eyes of MdDS Warriors. Let’s keep working together and find the better life we deserve.
MdDS Maelstrom
fear of falling, depression and anxiety, deep uncertainty… Karen isn’t alone in having a maelstrom of fears and emotions.
