MdDS Patient Registry: Research Designed with You in Mind MdDS Foundation 10:27 am Patient Registry, I Am Empowered 03/17/2026 MdDS Patient Registry: Research Designed with You in Mind Living with MdDS is hard enough—contributing to research shouldn’t be. The upcoming MdDS Patient Registry is being designed with you in mind! • Simple multiple choice surveys • Point-and-click ease • Start and stop at your convenience! See how your journey can fuel new treatments and connect you with community insights. Read More
Your Story Matters: Let’s Get MdDS in the Headlines MdDS Foundation 12:09 pm Raising Awareness, I Am Empowered 02/27/2026 Your Story Matters: Let’s Get MdDS in the Headlines MdDS is gaining media attention. Keep the momentum! Share your story with local media to highlight real-life impacts. Use this template! Read More
Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm Raising Awareness, Our Impact, Advocacy 11/12/2025 Breakthrough Summit Report: Turning Takeaways into Action More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. 👀 Want to know what this means for you? Read the full post now! Read More
Double Your Donation & Make the Invisible Visible, Today! MdDS Foundation 4:00 pm Uncategorized 10/14/2025 Double Your Donation & Make the Invisible Visible, Today! These zebras may be invisible, but the change we can make isn’t. With this Matching Challenge, your donation will have DOUBLE the IMPACT. You might even be able to TRIPLE it! Let’s hit this goal! Read More
Could Regular Tracking Be Your Key to Remission? MdDS Foundation 1:05 pm Patient Registry, I Am Empowered 09/24/2025 Could Regular Tracking Be Your Key to Remission? Routine tracking may reveal patterns that you never noticed before, enabling you to adjust your management tactics and take control of your MdDS. And maybe even achieve remission. Read More
Cayman Charter Boat—>Motion Sickness Forever MdDS Foundation 4:56 pm Faces of MdDS 09/02/2025 Cayman Charter Boat—>Motion Sickness Forever While struggling to find a doctor, Lynn stumbled upon the MdDS website. It gave her hope, relief, and answers. Today, she has a better understanding of her symptoms and her triggers. Telling her story 9 years after the boat charter that left her with “persistent motion sickness,” she wants you to know that you are not alone. And that there is hope! Read More
The Ship Still Rocks MdDS Foundation 5:56 pm Faces of MdDS 06/30/2025 The Ship Still Rocks “My poem expresses both the disorientation and emotional toll of MdDS and the strength, resilience, and grace required to navigate it. I hope that it’s message echoes for others as well.” ~ Elizabeth Read More
Dear Reader, MdDS Foundation 8:04 pm Raising Awareness, Faces of MdDS 06/07/2025 Dear Reader, Join us as we raise awareness, so more people walking around undiagnosed or misdiagnosed may find support in our community. If you win the zebra, take it everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale! Read More
