The Ship Still Rocks
“My poem expresses both the disorientation and emotional toll of MdDS and the strength, resilience, and grace required to navigate it. I hope that it’s message echoes for others as well.” ~ Elizabeth
Author: MdDS Foundation
Dear Reader,
Join us as we raise awareness, so more people walking around undiagnosed or misdiagnosed may find support in our community. If you win the zebra, take it everywhere you go. Snap photos. And tell everyone your MdDS Zebra Tale!
NEW Severity Scale Simplifies MdDS Symptom Tracking
Remarkably simple to use and available as a book mark. 
Or download and print to start using today. Bridge the communication gap between doctors and patients!
Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT
The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do.
Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Rocking Candles, Giving Back since 2018
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
