This is an opportunity for graphic artists to add their visual voice and help shape the success of the MdDS Foundation. The Foundation relies on the help of volunteers and is in search of a Graphic Designer to help with the MdDS Patient Registry, a research study under construction. 👷🏻The registry is on-track to soft […]
The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do.
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
Exciting news you can use! This edition is filled with important information that you definitely want to read.
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
It’s been a privilege for us to raise awareness through the eyes of MdDS Warriors. Let’s keep working together and find the better life we deserve.
fear of falling, depression and anxiety, deep uncertainty… Karen isn’t alone in having a maelstrom of fears and emotions.