In this episode of Ça commence aujourd’hui, French journalist Faustine Bollaert interviews a young woman who’s been dealing with Disembarkment Syndrome since June. Watch the clip in French or read the transcript in English here.
This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post.
I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior
Join us and “Shine a Light on MdDS.” Whether using social media, sending out educational brochures, or wearing MdDS apparel while you’re out-and-about, your help is vital to raising awareness of MdDS.
The 2018 Giving Season launches with two matching challenges.
MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition.
1 in 10 Americans has a rare disease or disorder. Globally, the figure is 350 million. Rare diseases are not rare! This poem will resonate with someone you know. Please read and share, Hello This Is Me.
We are pleased to introduce you to our Provider Outreach Committee, which works to raise awareness of MdDS among health care providers and to provide you with the best Professional Directory possible.