Part 2: The 2024 Breakthrough Summit, Tote & PAOs
Summit Recap: Over the course of the three-day event, I met many other Patient Advocacy Organizations with shared challenges and successes.
Author: MdDS Foundation
Alone we are Rare. Together we are Strong.
The majority of rare disorder patients do not have an Advocacy Organization representing them. Read how the MdDS Foundation is advocating for you, today on the blog.
June 2024 Newsletter
Exciting news you can use! This edition is filled with important information that you definitely want to read.
Rocking Candles, Giving Back since 2018
For eight years, Kate has been explaining to others what daily life is like for MdDS sufferers. An MdDS warrior herself, she has been creating custom candles and giving back through donations to support research so we can all “get off that boat.”
Be seen. Be heard. Read to the bottom.
It’s been a privilege for us to raise awareness through the eyes of MdDS Warriors. Let’s keep working together and find the better life we deserve.
MdDS Maelstrom
fear of falling, depression and anxiety, deep uncertainty… Karen isn’t alone in having a maelstrom of fears and emotions.
Join us in raising awareness & make a bigger impact!
Seasick On Land. This ink-on-paper series is one artist’s way of raising awareness of MdDS.