Breakthrough Summit Report: Turning Takeaways into Action MdDS Foundation 12:07 pm Raising Awareness, Our Impact, Advocacy, Patient Registry, I Am Empowered 11.12.2025 Breakthrough Summit Report: Turning Takeaways into Action Conference Success ✅ We met with top IAMRARE® Patient Registry Leaders to talk strategy and open up new opportunities. More than attending an annual meeting, making in-person connections is how we amplify the MdDS community’s voice and create lasting positive change. Want to know what this means for you? Read the full post now! Read More
Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT MdDS Foundation 3:49 pm Our Impact, PROspective 1.15.2025 Advisory Board Member Spotlight: Dr. Jennifer Stoskus, PT The MdDS Foundation is proud to have a distinguished group of volunteers dedicated to supporting the MdDS Patient Registry. In the coming weeks, we’ll be highlighting other members and the important work they do. Read More
June 2024 Newsletter MdDS Foundation 11:59 am Our Impact, Raising Awareness, Announcements, Faces of MdDS, Research, News 7.8.2024 June 2024 Newsletter Exciting news you can use! This edition is filled with important information that you definitely want to read. Read More
Scholarship Announcement & Commitment to Cures MdDS Foundation 10:20 am Raising Awareness, Our Impact, Announcements, Research 5.30.2023 Scholarship Announcement & Commitment to Cures Our commitment to life-changing research continues with a scholarship announcement. Read More
Does MdDS have an ICD code? MdDS Foundation 5:18 am Our Impact 12.5.2020 Does MdDS have an ICD code? This International Volunteer Day, we’d like to thank volunteers for our ICD code, R42. Learn more about the International Classification of MdDS and its significance to the medical world in today’s blog post. Read More
