Young Woman Depicts Her Experience with MdDS Through Her Art MdDS Foundation 7:06 pm Raising Awareness, art, Faces of MdDS 2.20.2023 Young Woman Depicts Her Experience with MdDS Through Her Art Depicting her experience with MdDS through art, Christina shared Infinite Waves with us. The strong symbolism in this painting allows those living with MdDS to find commonality and validation for their own feelings. Read More
Gravitational Pull MdDS Foundation 6:40 pm Raising Awareness, art, Faces of MdDS 2.25.2022 Gravitational Pull I have made this painting as a way to visualise, capture, and why not, pay tribute to this invisible condition that is affecting my life but also making me appreciate it more. I dedicate this to all of you, #MdDSwarriors. ~Alex Bodea Read More
Volunteer Spotlight: Your friendly gatekeeper, Brandy MdDS Foundation 1:34 pm Raising Awareness 6.21.2021 Volunteer Spotlight: Your friendly gatekeeper, Brandy Volunteering anywhere is a great use of time for anyone. If you can finish volunteering somewhere and know that you’ve impacted the life of anyone, personally it makes me feel really good. ~Brandy Read More
MdDS highlighted on popular French tv show “Ça commence aujourd’hui” MdDS Foundation 8:42 pm Raising Awareness, Faces of MdDS 3.3.2021 MdDS highlighted on popular French tv show “Ça commence aujourd’hui” In this episode of Ça commence aujourd’hui, French journalist Faustine Bollaert interviews a young woman who’s been dealing with Disembarkment Syndrome since June. Watch the clip in French or read the transcript in English here. Read More
Life Rocks with Rocking Candles a Contributing Writer 6:40 pm Raising Awareness, Faces of MdDS 11.25.2020 Life Rocks with Rocking Candles After developing Mal de Débarquement in 2018, Kate decided to be part of the solution. She started making candles and launched her business, Rocking Candles. Each candle sold raises awareness of MdDS, and she donates 10% of the proceeds from rockingcandles.com to the MdDS Foundation! Read More
Meet Jodi L., MdDS Awareness Star MdDS Foundation 5:22 pm Raising Awareness, Faces of MdDS 10.15.2019 Meet Jodi L., MdDS Awareness Star I have had a crazy year but I want to share some things I have been doing to raise awareness about MdDS. ~Jodi L., #MdDSwarrior Read More
Shine a Light on MdDS MdDS Foundation 11:00 am Raising Awareness, Acknowledgment 5.21.2019 Shine a Light on MdDS Join us and “Shine a Light on MdDS.” Whether using social media, sending out educational brochures, or wearing MdDS apparel while you’re out-and-about, your help is vital to raising awareness of MdDS. Read More
Rare Diseases Are Not Rare! MdDS Foundation 6:38 pm art, Raising Awareness 11.13.2018 Rare Diseases Are Not Rare! MdDS warrior submissions to the National Center for Advancing Translational Sciences (NCATS) “Rare Diseases Are Not Rare!” competition. Read More
